中青年首发缺血性脑卒中患者疾病管理旅程地图的研究

doi:10.3761/j.issn.1672-9234.2026.03.015

中华护理教育 ›› 2026, Vol. 23 ›› Issue (3): 350-356.doi: 10.3761/j.issn.1672-9234.2026.03.015

中青年首发缺血性脑卒中患者疾病管理旅程地图的研究

吕培华¹(), 周雪迎¹^,^*(), 郭园丽¹, 马珂珂¹, 郝娟娟¹, 刘延锦²

1.郑州大学第一附属医院神经内科郑州市 450052
2.郑州大学第一附属医院护理部郑州市 450052

收稿日期:2025-08-08 出版日期:2026-03-15 发布日期:2026-03-17
通讯作者: *周雪迎，E-mail：1814225709@qq.com
作者简介:吕培华：女，硕士，副主任护师，E-mail：peihualv1234@163.com
基金资助:
河南省科技攻关计划省部共建项目(SBGJ202103074)

Mapping the disease management journey of young and middle-aged patients with first-ever ischemic stroke

LÜ Peihua¹(), ZHOU Xueying¹^,^*(), GUO Yuanli¹, MA Keke¹, HAO Juanjuan¹, LIU Yanjin²

1. Department of Neurology，the First Affiliated Hospital of Zhengzhou University，Zhengzhou 450052，China
2. Department of Nursing，the First Affiliated Hospital of Zhengzhou University，Zhengzhou 450052，China

Received:2025-08-08 Online:2026-03-15 Published:2026-03-17
Contact: *ZHOU Xueying，E-mail：1814225709@qq.com
Supported by:
Province-Ministry Co-constructed Project of Henan Provincial Science and Technology Tackling Plan(SBGJ202103074)

摘要/Abstract

摘要：

目的基于旅程地图识别中青年首发缺血性脑卒中患者疾病管理过程中的行为、困境与需求，为优化该群体的全周期护理服务提供依据。方法运用描述性质性研究方法，于2024年1月—5月选取12名中青年首发缺血性脑卒中患者，分别于出院前1天、出院后3个月、6个月进行3次半结构式访谈。采用内容分析法分析资料并绘制患者旅程地图。结果以中青年首发缺血性脑卒中患者诊疗初步决策期、医护患协同管理期、自我管理建立期、社会功能重建期作为横向时间轴线，以行为、困境、需求等为纵轴，归纳总结出24个主题，并绘制旅程地图。结论中青年首发缺血性脑卒中患者疾病管理旅程漫长复杂，呈现出周期特异性，医护人员应提供全面、全程、精准的支持策略，满足患者需求，化解患者疾病管理困境。

关键词: 旅程地图, 中青年, 缺血性脑卒中, 疾病管理, 护理

Abstract:

Objective To identify behaviors，challenges，and needs in the disease management process of young and middle-aged patients with first-episode ischemic stroke using journey mapping，thereby providing a reference for optimizing comprehensive care services for this population. Methods A descriptive qualitative research approach was employed. Twelve middle-aged and young patients with first-time ischemic stroke were selected between January and May，2024. Each participant underwent three semi-structured interviews：one day before discharge，and at 3 and 6 months post-discharge. Data were analyzed using content analysis to construct patient journey maps. Results A patient journey map was constructed，with the timeline delineated across four phases：taking the initial diagnosis and treatment decision-making，healthcare-provider-patient collaborative management，self-management establishment，and social function reconstruction. Behaviors，challenges，and needs formed the vertical dimensions of analysis. A total of 24 themes were synthesized across these phases，and the journey map was graphically developed. Conclusion The disease management journey for young and middle-aged patients with first-time ischemic stroke is lengthy and complex，with distinct phase-specific characteristics. Healthcare providers should implement comprehensive，continuous，and precise support strategies to meet patient needs and resolve challenges in disease management.

Key words: Journey Mapping, Young and Middle-Aged Adults, Ischemic Stroke, Disease Management, Nursing

吕培华, 周雪迎, 郭园丽, 马珂珂, 郝娟娟, 刘延锦. 中青年首发缺血性脑卒中患者疾病管理旅程地图的研究[J]. 中华护理教育, 2026, 23(3): 350-356.

LÜ Peihua, ZHOU Xueying, GUO Yuanli, MA Keke, HAO Juanjuan, LIU Yanjin. Mapping the disease management journey of young and middle-aged patients with first-ever ischemic stroke[J]. Chinese Journal of Nursing Education, 2026, 23(3): 350-356.

图/表 2

参考文献 15

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中青年首发缺血性脑卒中患者疾病管理旅程地图的研究

Mapping the disease management journey of young and middle-aged patients with first-ever ischemic stroke

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