中青年首发缺血性脑卒中患者疾病管理旅程地图的研究

doi:10.3761/j.issn.1672-9234.2026.03.015

Abstract

Abstract:

Objective To identify behaviors，challenges，and needs in the disease management process of young and middle-aged patients with first-episode ischemic stroke using journey mapping，thereby providing a reference for optimizing comprehensive care services for this population. Methods A descriptive qualitative research approach was employed. Twelve middle-aged and young patients with first-time ischemic stroke were selected between January and May，2024. Each participant underwent three semi-structured interviews：one day before discharge，and at 3 and 6 months post-discharge. Data were analyzed using content analysis to construct patient journey maps. Results A patient journey map was constructed，with the timeline delineated across four phases：taking the initial diagnosis and treatment decision-making，healthcare-provider-patient collaborative management，self-management establishment，and social function reconstruction. Behaviors，challenges，and needs formed the vertical dimensions of analysis. A total of 24 themes were synthesized across these phases，and the journey map was graphically developed. Conclusion The disease management journey for young and middle-aged patients with first-time ischemic stroke is lengthy and complex，with distinct phase-specific characteristics. Healthcare providers should implement comprehensive，continuous，and precise support strategies to meet patient needs and resolve challenges in disease management.

Key words: Journey Mapping, Young and Middle-Aged Adults, Ischemic Stroke, Disease Management, Nursing

LÜ Peihua, ZHOU Xueying, GUO Yuanli, MA Keke, HAO Juanjuan, LIU Yanjin. Mapping the disease management journey of young and middle-aged patients with first-ever ischemic stroke[J].Chinese Journal of Nursing Education, 2026, 23(3): 350-356.

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Mapping the disease management journey of young and middle-aged patients with first-ever ischemic stroke

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