癌症相关继发性淋巴水肿患者健康素养用户画像的构建研究

doi:10.3761/j.issn.1672-9234.2025.07.014

摘要/Abstract

摘要：

目的探究癌症相关继发性淋巴水肿患者健康素养水平特征及差异，构建用户画像，为制订癌症相关干预措施提供参考。方法采用目的抽样法选取12例癌症相关继发性淋巴水肿患者，基于Nutbeam健康素养理论对患者进行半结构式访谈。通过主题分析法分析资料，获取患者个人特征、淋巴水肿自我管理现状。根据资料分析结果，人工抽取患者健康素养主题维度和标签进行用户聚类分群，基于分群结果和WordArt软件完成画像的可视化。结果最终提取功能性健康素养、互动性健康素养、批判性健康素养和电子健康素养4个主题维度、15个主题标签。基于患者个人特征构建出4类典型画像，分别是知行合一型、缺乏实践型、技能欠缺型和被动学习型。结论癌症相关继发性淋巴水肿患者健康素养水平存在的群体差异，可根据患者画像给予精准、个性化的干预措施。未来可基于用户画像开发管理系统，提升护理效率与精准度。

关键词: 癌症, 继发性淋巴水肿, 健康素养, 用户画像, 质性研究

Abstract:

Objective To explore the characteristics of health literacy levels and population differences among patients with cancer-related lymphedema，construct user portraits，and provide references for formulating cancer-related intervention measures. Methods Twelve patients with cancer-related lymphedema were selected according to the purpose sampling method，and semi-structured interviews were conducted based on Nutbeam Health Literacy Theory. Data were analyzed using thematic analysis to obtain personal characteristics and self-management status of lymphedema of the patients. Based on the data analysis results，patient health literacy theme dimensions and tags were manually extracted for user clustering，and the visualization of portraits was completed based on the clustering results and WordArt software. Results Ultimately，four thematic dimensions of health literacy，namely functional health literacy，interactive health literacy，critical health literacy，and e-health literacy，as well as 15 thematic labels were extracted. Four typical portraits of the health literacy level of patients were the integration of knowledge and action，lack of practice，lack of skills and passive learning. Conclusion The group variances in health literacy levels among patients with cancer-related lymphedema can be tackled through precise and individualized intervention measures in accordance with the depicted patient profiles. In the future，a management platform can be established based on user profiles to boost efficiency and precision of care.

Key words: Cancer, Secondary lymphedema, Health literacy, User persona, Qualitative research

赵梦琴, 姚佳盈, 梅晓凤, 李英, 浦丽敏, 刘婷婷, 陈肖敏. 癌症相关继发性淋巴水肿患者健康素养用户画像的构建研究[J]. 中华护理教育, 2025, 22(7): 855-861.

ZHAO Mengqin, YAO Jiaying, MEI Xiaofeng, LI Ying, PU Limin, LIU Tingting, CHEN Xiaomin. Health literacy in patients with cancer-related lymphedema：a qualitative user persona study[J]. Chinese Journal of Nursing Education, 2025, 22(7): 855-861.

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