系统性红斑狼疮患者网络健康信息鉴别能力干预方案的构建

doi:10.3761/j.issn.1672-9234.2022.06.003

Abstract

Abstract:

Objective To develop an interventional program for improving identification ability of online health information in patients with systemic lupus erythematosus（SLE）. Methods Based on literature analysis and consultation meetings,the first draft of the interventional program was constructed. Then Delphi method was adopted. Fifteen experts in the related fields were invited to conduct 2 rounds of mail consultations regarding the program contents. Results The final interventional program included 5 online lectures. For the training contents,the effective recovery rates of the two rounds of expert consultations were 100% with the authoritative coefficient was 0.90. After two rounds of expert consultations,the importance values of each item were different from 4.06 to 4.93. The coefficients of variance of each item varied from 0.05 to 0.18. The contents included 4 modules：basic knowledge of SLE,quality of online health information,methods to obtain high-quality online health information,and methods to identify online health information. Conclusion The interventional program for improving online health information identification ability in patients with SLE is scientific,applicable and reliable,which is the foundation for the following pilot study.

Key words: Lupus Erythematosus,Systemic, Delphi Technique, Consumer Health Information, Identification ability

XU Liang-mei, WANG Lei, GAO Yu-meng, LI Xing, CHEN Pei-ling, XIE Lun-fang. The development of an interventional program on identification ability of online health information in patients with systemic lupus erythematosus[J].Chinese Journal of Nursing Education, 2022, 19(6): 496-501.

Figures/Tables 1

References 28

[1]	Shaikh MF, Jordan N, D’Cruz DP. Systemic lupus erythematosus[J]. Clin Med (Lond), 2017, 17(1):78-83.
[2]	Carter EE, Barr SG, Clarke AE. The global burden of SLE:prevalence,health disparities and socioeconomic impact[J]. Nat Rev Rheumatol, 2016, 12(10):605-620. doi: 10.1038/nrrheum.2016.137 pmid: 27558659
[3]	Gergianaki I, Bortoluzzi A, Bertsias G. Update on the epidemiology,risk factors,and disease outcomes of systemic lupus erythematosus[J]. Best Pract Res Clin Rheumatol, 2018, 32(2):188-205. doi: S1521-6942(18)30053-6 pmid: 30527426
[4]	孙秋子, 周文琴, 张莹, 等. 慢性病患者健康信息搜寻行为的调查分析[J]. 护理学杂志, 2019, 34(9):84-86.
	Sun QZ, Zhou WQ, Zhang Y, et al. Investigation and analysis of health information-seeking behavior among patients with chronic disease[J]. J Nurs Sci, 2019, 34(9):84-86.
[5]	宋丹, 周晓英, 郭敏. 网络健康信息生态系统构成要素分析[J]. 图书与情报, 2015(4):11-18.
	Song D, Zhou XY, Guo M. Analysis of essentials in network health information ecology system[J]. Libr Inf, 2015(4):11-18.
[6]	Lu XY, Zhang RT, Wu W, et al. Relationship between Internet health information and patient compliance based on trust:empirical study[J]. J Med Internet Res, 2018, 20(8):e253. doi: 10.2196/jmir.9364
[7]	赵蕊菡, 陈一. 基于扎根理论的网络健康信息多维度风险感知理论模型研究[J]. 情报理论与实践, 2020, 43(1):68-75.
	Zhao RH, Chen Y. Theoretical model of the multi-dimensional risk perception of online health information based on grounded theory[J]. Inf Stud Theory Appl, 2020, 43(1):68-75.
[8]	刘兴广. 从“魏则西事件”看网络搜索引擎媒介责任的缺失[J]. 新闻研究导刊, 2018, 9(24):69-70.
	Liu XG. The lack of media responsibility of internet search engines from the "Wei Zexi Incident"[J]. J News Res, 2018, 9(24):69-70.
[9]	Daraz L, Morrow AS, Ponce OJ, et al. Can patients trust online health information? A meta-narrative systematic review addressing the quality of health information on the Internet[J]. J Gen Intern Med, 2019, 34(9):1884-1891.
[10]	Sun YL, Zhang Y, Gwizdka J, et al. Consumer evaluation of the quality of online health information:systematic literature review of relevant criteria and indicators[J]. J Med Internet Res, 2019, 21(5):e12522. doi: 10.2196/12522
[11]	Sbaffi L, Rowley J. Trust and credibility in web-based health information:a review and agenda for future research[J]. J Med Internet Res, 2017, 19(6):e218. doi: 10.2196/jmir.7579
[12]	周广学. 论用户信息鉴别能力[J]. 情报杂志, 2001, 20(8):31-32.
	Zhou GX. Exploration on the ability of user information identification[J]. J Inf, 2001, 20(8):31-32.
[13]	杨艳. 系统性红斑狼疮患者电子健康素养与网络健康信息寻求行为的研究[D]. 合肥: 安徽医科大学, 2019.
	Yang Y. Research on eHealth literacy and online health information seeking behavior among patients with systemic lupus erythematosus[D]. Hefei: Anhui Medical University, 2019.
[14]	Higgins JPT, Green S. Cochrane handbook for systematic reviews of interventions Version 5.1.0. 2011[EB/OL]. [2021-10-10]. www.cochrane-handbook.org.
[15]	胡雁. 循证护理学[M]. 北京: 人民卫生出版社, 2012.
	Hu Y. Evidence-based nursing[M]. Beijing: People’s Medical Publishing House, 2012.
[16]	李峥, 刘宇. 护理学研究方法[M]. 北京: 人民卫生出版社, 2012.
	Li Z, Liu Y. Nursing research methods[M]. Beijing: People’s Medical Publishing House, 2012.
[17]	Hochberg MC. Updating the American College of Rheumatology revised criteria for the classification of systemic lupus erythematosus[J]. Arthritis Rheum, 1997, 40(9):1725.
[18]	Norman CD, Skinner HA. eHEALS:the eHealth literacy scale[J]. J Med Internet Res, 2006, 8(4):e27. doi: 10.2196/jmir.8.4.e27
[19]	郭帅军, 余小鸣, 孙玉颖, 等. eHEALS健康素养量表的汉化及适用性探索[J]. 中国健康教育, 2013, 29(2):106-108,123.
	Guo SJ, Yu XM, Sun YY, et al. Adaptation and evaluation of Chinese version of eHEALS and its usage among senior high school students[J]. Chin J Heal Educ, 2013, 29(2):106-108,123.
[20]	厉锦巧, 张邢炜, 张伟, 等. 冠心病网络健康信息的质量、可理解性和可实施性评估[J]. 中华护理教育, 2019, 16(3):173-177.
	Li JQ, Zhang XW, Zhang W, et al. Evaluation of the quality,understandability and utilizability of online coronary heart disease information[J]. Chin J Nurs Educ, 2019, 16(3):173-177.
[21]	Charnock D, Shepperd S, Needham G, et al. DISCERN:an instrument for judging the quality of written consumer health information on treatment choices[J]. J Epidemiol Community Health, 1999, 53(2):105-111. doi: 10.1136/jech.53.2.105
[22]	石晶霞, 王利军, 邹立君, 等. 基于HONcode准则的武汉市某医学院学生选择健康类网站行为影响因素的实证研究[J]. 医学与社会, 2015, 28(5):74-77,97.
	Shi JX, Wang LJ, Zou LJ, et al. An empirical research on the influencing factors of medical students’ health websites selecting behavior based on the HONcode criterion in a medical college,Wuhan[J]. Med Soc, 2015, 28(5):74-77,97.
[23]	李月琳, 张秀, 王姗姗. 社交媒体健康信息质量研究:基于真伪健康信息特征的分析[J]. 情报学报, 2018, 37(3):294-304.
	Li YL, Zhang X, Wang SS. Health information quality in social media:an analysis based on the features of real and fake health information[J]. J China Soc Sci Tech Inf, 2018, 37(3):294-304.
[24]	Lee K, Hoti K, Hughes JD, et al. Interventions to assist health consumers to find reliable online health information:a comprehensive review[J]. PLoS One, 2014, 9(4):e94186. doi: 10.1371/journal.pone.0094186
[25]	张雅琴, 方申菊. 以媒体为基础健康教育在系统性红斑狼疮患者中应用效果研究[J]. 中国预防医学杂志, 2020, 21(3):254-257.
	Zhang YQ, Fang SJ. New media-based health education intervention in patients with systemic lupus erythematosus[J]. Chin Prev Med, 2020, 21(3):254-257.
[26]	Chambers SK, Ritterband L, Thorndike F, et al. A study protocol for a randomised controlled trial of an interactive web-based intervention:Cancer Cope[J]. BMJ Open, 2017, 7(6):e017279. doi: 10.1136/bmjopen-2017-017279
[27]	杨慧, 陈玮, 叶燕琴. 院外微信平台在系统性红斑狼疮患者延续性护理中的应用[J]. 中外医学研究, 2018, 16(29):76-77.
	Yang H, Chen W, Ye YQ. Application of out-of-hospital WeChat platform in continuous nursing of patients with systemic lupus erythematosus[J]. Chin Foreign Med Res, 2018, 16(29):76-77.
[28]	Chang AM, Gardner GE, Duffield C, et al. A Delphi study to validate an advanced practice nursing tool[J]. J Adv Nurs, 2010, 66(10):2320-2330. doi: 10.1111/j.1365-2648.2010.05367.x pmid: 20626481

The development of an interventional program on identification ability of online health information in patients with systemic lupus erythematosus

HTML

PDF(PC)

Like

Knowledge

Abstract

Cite this article

share this article

Figures/Tables 1

References 28

Related Articles 15

Metrics

Comments

Recommended 10

[1]	CHEN Yuan, WU Linjing, YU Haiyan, WANG Ligang. Construction of the re-evaluation management system for the cardiovascular specialty nurses [J]. Chinese Journal of Nursing Education, 2024, 21(9): 1126-1131.
[2]	JIANG Yuanyuan, CAO Yingjuan, GUAN Xiangyun, ZHANG Jinxin, WANG Meijuan, LI Li. Research on the construction of competency oriented clinical nurse respiratory therapy training objectives and content [J]. Chinese Journal of Nursing Education, 2024, 21(8): 968-975.
[3]	HU Sihong, WANG Qin, WANG Mingzhu, LI Shanshan, TAO Yanling. Construction of a peritoneal dialysis peer educator training content checklist [J]. Chinese Journal of Nursing Education, 2024, 21(8): 986-992.
[4]	RAO Meng, LU Yulin, YANG Dan, WANG Xiaoqin, SHI Shuyu. Construction of content list of hospice care for training multidisciplinary teams in community [J]. Chinese Journal of Nursing Education, 2024, 21(7): 849-855.
[5]	LI Chunyan, HUANG Ping, WANG Xiaojing, FU Yichao, ZHOU Tiantian, HE Jingjing. Construction of an evaluation index system of training bases for emergency specialty nurses [J]. Chinese Journal of Nursing Education, 2024, 21(7): 780-787.
[6]	GAI Ying, LI Chang, ZHANG Jimin, GENG Xiaoting, JIANG Hailong, LI Shuying, GUO Yanwei. Construction and application of a postpartum follow-up checklist for gestational diabetes mellitus [J]. Chinese Journal of Nursing Education, 2024, 21(4): 389-396.
[7]	ZHANG Xueling, XIAO Ye, ZHANG Shaoying, YANG Jingping, LIN Jingjing, HUANG Minfang, LIN Rongjin. Construction of training program of nursing ability for the whole process care of midwives in high-risk pregnancy [J]. Chinese Journal of Nursing Education, 2023, 20(9): 1084-1089.
[8]	HE Jingjing, HUANG Ping, LI Chunyan, ZHOU Tiantian. Construction of stratified training program for disaster nurses in tertiary hospitals [J]. Chinese Journal of Nursing Education, 2023, 20(7): 829-834.
[9]	OUYANG Ziyao,FAN Dejing,PAN Xiao,LI Xiaohong,PAN Qini,TAO Pinyue,HUANG Huiqiao. Development of the evaluation system of clinical case database for master of nursing specialist postgraduate teaching [J]. Chinese Journal of Nursing Education, 2023, 20(6): 665-671.
[10]	WANG Qiong,ZHANG Jinhua,WANG Keman,ZHANG Yuanyuan,CHAI Cuiping,HAN Shuhuan. Construction of a standardized training program for nurses in primary hospitals in the medical consortium [J]. Chinese Journal of Nursing Education, 2023, 20(6): 697-701.
[11]	SONG Zhaohui, TAN Meiqi, JIANG Songyun, LUO Ji. Construction of a training program for new nurses in central sterile supply department [J]. Chinese Journal of Nursing Education, 2023, 20(6): 702-706.
[12]	ZHANG Huan, GAO Min, LIU Ye, LIN Yan, ZHAO Shan. Revision of the applicability of Mini-Clinical Examination Exercise in the evaluation of nurses’ ability in emergency department [J]. Chinese Journal of Nursing Education, 2023, 20(5): 523-528.
[13]	WANG Yuan, DING Fu, QIU Dan, YANG Ziying, ZHAO Yue. A social constructivim-based curriculum design for Comprehensive Geriatric Assessment Techniques for undergraduate nursing programs [J]. Chinese Journal of Nursing Education, 2023, 20(5): 549-553.
[14]	LI Xiran, WU Xiaofen, SU Ting, LIANG Jin, WANG Lijie, WANG Ning. Development of a nursing minimum data set for long-term care services in aged care settings [J]. Chinese Journal of Nursing Education, 2023, 20(4): 403-408.
[15]	HUANG Yuxing, LI Yan, LIU Ning, SHI Yalin, HUANG Yu. Research on the construction of progressive innovation and entrepreneurship curriculum system for nursing undergraduates [J]. Chinese Journal of Nursing Education, 2023, 20(4): 389-394.