Abstract:

Objective To construct a parent-led health management program for children with epilepsy based on Health Action Process Approach（HAPA） and evaluate its effect in application. Methods Based on literature research and group discussions，a parent-led health management program for children with epilepsy was constructed after two rounds of expert consultation. Using the convenience sampling method，parents of children with epilepsy admitted to a tertiary hospital in Henan Province from February to May 2022 were selected as the control group（30 cases），and parents of children with epilepsy admitted from June to September 2022 were selected as the experimental group （30 cases）. While the control group received conventional health education，the experimental group received a parent-led health management program based on the control group. The knowledge of epilepsy disease，the level of disease management，and the number of epileptic seizures were compared between the two groups three months after discharge from the hospital. Results A total of 12 experts responded to the consultation. The coefficient of expert familiarity was 0.84，the coefficient of authority was 0.89，the coefficient of judgment was 0.93，and the coefficients of Kendall’s harmony ranged from 0.172 to 0.333（all P<0.05）. The constructed parent-led health management program for children with epilepsy was divided into three stages：pre-intention，intention，and action. Three months after discharge，the epilepsy disease knowledge score of the experimental group was（85.13±6.99），higher than that of the control group（78.20±10.97），with a statistically significant difference（t=2.920，P<0.05）. Meanwhile，the disease management difficulty subscale score of the experimental group was（27.40±5.91），lower than that of the control group（33.67±9.92），with a difference of statistical significance（t=2.973，P<0.05）. In addition，the subscale score of disease management ability was（48.10±4.85），which was higher than that of the control group（44.87±6.06），and the difference was statistically significant（t=2.281，P<0.05）. There was no statistically significant difference in the number of seizures between the two groups（Z=0.187，P=0.852）. Conclusion The parent-led health management program for children with epilepsy constructed in this study is scientific，reliable，safe，and effective，and can improve the family’s knowledge of the disease and disease management ability.

Key words: Epilepsy, Child, Health Promotion, Health action process approach