创伤性脑损伤患儿家庭照顾者支持性需求的研究进展

doi:10.3761/j.issn.1672-9234.2022.07.017

Abstract

Abstract:

This paper illustrated the concept of family caregivers and supportive needs,introduced the tools for assessing the needs of caregivers of children with brain injury,described and analyzed the supportive needs of caregivers of children with brain injury from the aspects of symptom management,rehabilitation services,follow-up,hospital-school transition,and the family caregivers’ own psychology. Besides,the paper summarized the intervention and effects based on the hospital,community and family to provide references for relevant researches.

Key words: Brain Injuries, Child, Home Nursing（non-profession）, Social Support, Needs Assessment

ZHANG Jie,FU Qin. A review of supportive needs of family caregivers of children with traumatic brain injury[J].Chinese Journal of Nursing Education, 2022, 19(7): 668-672.

References 40

[1]	Dewan MC, Mummareddy N, Wellons III JC,et al. Epidemiology of global pediatric traumatic brain injury:qualitative review[J]. World Neurosurgery, 2016,91:497-509.
[2]	Lindsey HM, Wilde EA, Caeyenberghs K,et al. Longitudinal neu-roimaging in pediatric traumatic brain injury:current state and consideration of factors that influence recovery[J]. Front Neurol, 2019,10:1296.
[3]	Zamani A, Mychasiuk R, Semple BD. Determinants of social behavior deficits and recovery after pediatric traumatic brain injury[J]. Exp Neurol, 2019,314:34-45.
[4]	Minney MJ, Roberts RM, Mathias JL,et al. Service and support needs following pediatric brain injury:perspectives of children with mild traumatic brain injury and their parents[J]. Brain Inj, 2019, 33(2):168-182. doi: 10.1080/02699052.2018.1540794 pmid: 30396278
[5]	Todis B, McCart M, Glang A. Hospital to school transition following traumatic brain injury:a qualitative longitudinal study[J]. NeuroRehabilitation, 2018, 42(3):269-276. doi: 10.3233/NRE-172383
[6]	Beauchamp MH, Séguin M, Gagner C,et al. The PARENT model:a pathway approach for understanding parents’ role after early childhood mild traumatic brain injury[J]. Clin Neuropsychol, 2021, 35(5):846-867. doi: 10.1080/13854046.2020.1834621
[7]	Tuerk C, Gagner C, Degeilh F,et al. Quality of life 6 and 18 months after mild traumatic brain injury in early childhood:an exploratory study of the role of genetic,environmental,injury,and child factors[J]. Brain Res, 2020,1748:Article 147061.
[8]	Hunt AW, Laupacis D, Kawaguchi E,et al. Key ingredients to an active rehabilitation programme post-concussion:perspectives of youth and parents[J]. Brain Inj, 2018, 32(12):1534-1540. doi: 10.1080/02699052.2018.1502894
[9]	Schorr E, Wade SL, Taylor HG,et al. Parenting styles as a predictor of long-term psychosocial outcomes after traumatic brain injury (TBI) in early childhood[J]. Disabil Rehabilitation, 2020, 42(17):2437-2443. doi: 10.1080/09638288.2019.1602676
[10]	Bastawrous M. Caregiver burden:a critical discussion[J]. Int J Nurs Stud, 2013, 50(3):431-441. doi: 10.1016/j.ijnurstu.2012.10.005 pmid: 23131724
[11]	刘腊梅, 周兰姝, 吕伟波,等. 我国家庭照顾者的研究现状分析[J]. 解放军护理杂志, 2007, 24(9):51-53.
[12]	Campbell HS, Sanson-Fisher R, Taylor-Brown J,et al. The cancer support person’s unmet needs survey:psychometric properties[J]. Cancer, 2009, 115(14):3351-3359. doi: 10.1002/cncr.24386 pmid: 19472397
[13]	Osse BH, Vernooij-Dassen MJ, de Vree BP,et al. Assessment of the need for palliative care as perceived by individual cancer patients and their families:a review of instruments for improving patient participation in palliative care[J]. Cancer, 2000, 88(4):900-911. pmid: 10679661
[14]	郭艳, 范慧芳, 张淑青. 恶性血液病病人照顾者支持性需求研究进展[J]. 护理研究, 2020, 34(2):295-298.
	Guo Y, Fan HF, Zhang SQ. Research advances on supportive needs of caregivers of patients with hematologic malignancies[J]. Chin Nurs Res, 2020, 34(2):295-298.
[15]	Boise L, Heagerty B, Eskenazi L. Facing chronic illness:the fa-mily support model and its benefits[J]. Patient Educ Couns, 1996, 27(1):75-84. pmid: 8788751
[16]	Waaland PK, Burns C, Cockrell J. Evaluation of needs of high- and low-income families following paediatric traumatic brain injury[J]. Brain Inj, 1993, 7(2):135-146. pmid: 8453412
[17]	Gan C, Wright FV. Development of the family needs questionnaire - pediatric version[FNQ-P] - phase I[J]. Brain Inj, 2019, 33(5):623-632. doi: 10.1080/02699052.2019.1566836
[18]	Kreutzer J, Marwitz J, Klyce D,et al. Family needs on an inpatient brain injury rehabilitation unit:a quantitative assessment[J]. J Head Trauma Rehabil, 2018, 33(4):228-236. doi: 10.1097/HTR.0000000000000390 pmid: 29601345
[19]	Wharewera-Mika J, Cooper E, Kool B,et al. Caregivers’ voices:the experiences of caregivers of children who sustained serious accidental and non-accidental head injury in early childhood[J]. Clin Child Psychol Psychiatry, 2016, 21(2):268-286. doi: 10.1177/1359104515589636
[20]	Jones S, Davis N, Tyson SF. A scoping review of the needs of children and other family members after a child’s traumatic injury[J]. Clin Rehabilitation, 2018, 32(4):501-511. doi: 10.1177/0269215517736672
[21]	Kirk S, Fallon D, Fraser C,et al. Supporting parents following childhood traumatic brain injury:a qualitative study to examine information and emotional support needs across key care transitions[J]. Child Care Heal Dev, 2015, 41(2):303-313.
[22]	Jones S, Tyson S, Davis N,et al. Qualitative study of the needs of injured children and their families after a child’s traumatic injury[J]. BMJ Open, 2020, 10(11):e036682.
[23]	Fuentes MM, Wang J, Haarbauer-Krupa J,et al. Unmet rehabilitation needs after hospitalization for traumatic brain injury[J]. Pediatrics, 2018, 141(5)::e20172859.
[24]	Keetley R, Radford K, Manning JC. A scoping review of the needs of children and young people with acquired brain injuries and their families[J]. Brain Inj, 2019, 33(9):1117-1128. doi: 10.1080/02699052.2019.1637542 pmid: 31282198
[25]	Kitter B, Sharman R. Caregivers’ support needs and factors promoting resiliency after brain injury[J]. Brain Inj, 2015, 29(9):1082-1093. doi: 10.3109/02699052.2015.1018323
[26]	Spaw AJ, Lundine JP, Johnson SA,et al. Follow-up care adherence after hospital discharge in children with traumatic brain injury[J]. J Head Trauma Rehabil, 2018, 33(3):E1-E10.
[27]	Hartman LR, Tibbles A, Paniccia A,et al. A qualitative synthesis of families’ and students’ hospital-to-school transition experiences following acquired brain injury[J]. Glob Qual Nurs Res,2015.DOI: 10.1177/2333393615614307 doi: 10.1177/2333393615614307
[28]	Hartman LR, Duncanson M, Farahat SM,et al. Clinician and educator experiences of facilitating students’ transition back to school following acquired brain injury:a qualitative systematic review[J]. Brain Inj, 2015, 29(12):1387-1399. doi: 10.3109/02699052.2015.1071431 pmid: 26362526
[29]	卢美观, 黄华玲, 陈一霞. 重型颅脑损伤患儿主要照顾者早期心理体验的质性研究[J]. 海南医学, 2015, 26(15):2335-2337.
[30]	Rashid M, Goez HR, Caine V,et al. After a child’s acquired brain injury(ABI):an ethnographic study of being a parent[J]. J Pediatr Rehabilitation Med, 2016, 9(4):303-313. doi: 10.3233/PRM-160403
[31]	Tyerman E, Eccles FJR, Gray V. The experiences of parenting a child with an acquired brain injury:a meta-synthesis of the qualitative literature[J]. Brain Inj, 2017, 31(12):1553-1563. doi: 10.1080/02699052.2017.1341999 pmid: 28750173
[32]	Treble-Barna A, Sohlberg MM, Harn BE,et al. Cognitive intervention for attention and executive function impairments in children with traumatic brain injury:a pilot study[J]. J Head Trauma Rehabil, 2016, 31(6):407-418. pmid: 26580695
[33]	Hickey L, Anderson V, Hearps S,et al. Family Forward:a social work clinical trial promoting family adaptation following paediatric acquired brain injury[J]. Brain Inj, 2018, 32(7):867-878. doi: 10.1080/02699052.2018.1466195
[34]	West SK, Fletcher B, Rollins A,et al. Analysis of mild trau-matic brain injury outpatient follow-up[J]. J Trauma Nurs, 2020, 27(4):225-233. doi: 10.1097/JTN.0000000000000518
[35]	Kolakowsky-Hayner SA, Wright J, Shem K,et al. An effective community-based mentoring program for return to work and school after brain and spinal cord injury[J]. NeuroRehabilitation, 2012, 31(1):63-73. doi: 10.3233/NRE-2012-0775 pmid: 22523017
[36]	Costich MA, Peretz PJ, Davis JA,et al. Impact of a community health worker program to support caregivers of children with special health care needs and address social determinants of health[J]. Clin Pediatr, 2019, 58(11/12):1315-1320. doi: 10.1177/0009922819851263
[37]	Clasby B, Hughes N, Catroppa C,et al. Community-based interventions for adolescents following traumatic brain injury:a systematic review[J]. NeuroRehabilitation, 2018, 42(3):345-363
[38]	Brenner LA,Grassmeyer RP, Biffl S, et al.Met and unmet rehabilitative needs among pediatric patients with moderate to severe TBI[J]. Brain Inj,2021, 35(10):1162-1167. doi: 10.3233/NRE-172385
[39]	Tlustos SJ, Kirkwood MW, Taylor HG,et al. A randomized pro-blem-solving trial for adolescent brain injury:changes in social competence[J]. Rehabilitation Psychol, 2016, 61(4):347-357. doi: 10.1037/rep0000098
[40]	Wade SL, Taylor HG, Yeates KO,et al. Online problem solving for adolescent brain injury:a randomized trial of 2 approaches[J]. J Dev Behav Pediatr, 2018, 39(2):154-162. doi: 10.1097/DBP.0000000000000519

A review of supportive needs of family caregivers of children with traumatic brain injury

HTML

PDF(PC)

Like

Knowledge

Abstract

Cite this article

share this article

References 40

Related Articles 15

Metrics

Comments

Recommended 10

[1]	XIE Yuqing, ZHANG Xiangeng, WANG Yuting, WANG Hongyan, YANG Shenbi, GUO Qin. A study on the impact of social support on quality of life of women of childbearing age in ethnic areas of Sichuan Province [J]. Chinese Journal of Nursing Education, 2024, 21(3): 348-352.
[2]	LIU Yuanyuan, FU Changqing. The mediating effect of school belonging between perceived social support and mental resilience in nursing undergraduates [J]. Chinese Journal of Nursing Education, 2024, 21(1): 47-52.
[3]	LI Siqin, LU Hong, WU Manbo, LI Huijun, GAO Jidong, WANG Mengying, CHEN Lingmei, CHE Meiyue. Analysis of learned helplessness status and influencing factors in breast cancer patients [J]. Chinese Journal of Nursing Education, 2024, 21(1): 68-72.
[4]	QIAN Zhan, LIN Jinmin, YANG Xiaoting, ZHU Hui. Experience of children and adolescents with cancer returning to school：a qualitative Meta-synthesis [J]. Chinese Journal of Nursing Education, 2023, 20(8): 974-980.
[5]	ZHENG Yan, CHEN Xiaochun, YUAN Ting. Design and application evaluation of flying chess for education in children with type 1 diabetes [J]. Chinese Journal of Nursing Education, 2023, 20(5): 564-567.
[6]	LI Yongdong, LI Yumei, ZENG Feiyan, HUANG Yifei, LU Ning, NIU Xuejing. Research on the status and influencing factors of health-related hardiness in lung cancer patients undergoing chemotherapy [J]. Chinese Journal of Nursing Education, 2023, 20(4): 480-484.
[7]	ZHANG Wei, CHEN Jing, WANG Aihong. Analysis of self-compassion status and influencing factors in hematological malignancies patients [J]. Chinese Journal of Nursing Education, 2023, 20(4): 485-489.
[8]	ZHANG Qian, GUO Jinli, CHENG Hong, HUANG Yongbo, BAI Fan, XIANG Yongyan. Design and application of a perioperative therapeutic play program for school-aged children with fractures based on comfort theory [J]. Chinese Journal of Nursing Education, 2023, 20(3): 333-337.
[9]	WU Xiaohua, ZHOU Lianjuan, YU Jun, XU Jianying, YE Meina, SUN Lei, XU Hongzhen. Design and application of psychological preparation play for pre-magnetic resonance imaging examination in preschool children [J]. Chinese Journal of Nursing Education, 2023, 20(3): 338-342.
[10]	ZHENG Guoyan, GUO Ying, ZHANG Lingling, ZHANG Xiaobai, HUANG Dandan. The construction of a training system for maternal and infant specialty nurse in Henan Province [J]. Chinese Journal of Nursing Education, 2023, 20(2): 187-193.
[11]	HE Qiuping, LIU Tingting, CUI Weiwei, WANG Wei, CAO Miaomiao, MA Xiaoli, YE Bei. Construction and application of a parent-led health management program for children with epilepsy [J]. Chinese Journal of Nursing Education, 2023, 20(11): 1285-1291.
[12]	XIONG Yi, ZHANG Liuyi, HU Qiqi, WU Xiaoyu, ZHANG Dan. Experience of the spouses of pregnant women in participating in perinatal care：a meta-integration [J]. Chinese Journal of Nursing Education, 2023, 20(10): 1237-1244.
[13]	CHENG Gui-zhi, NI Qian-qian, XIN You-di, ZHOU Yan, ZHANG Yi-ni, ZHOU Li-hua, CHEN An. Application of the neonatal breast crawling in women with natural delivery [J]. Chinese Journal of Nursing Education, 2022, 19(6): 562-565.
[14]	CHEN Mei,CHEN Chun-mei,JIANG Qin. The effects of role paly as a nurse before surgery in children with ventricular septal defect [J]. Chinese Journal of Nursing Education, 2022, 19(5): 453-455.
[15]	YUAN Fan, WEI Xiao-long, YU Yao, LIU Shang-kun. Attributes of training needs of nurses specialized in anesthesiology [J]. Chinese Journal of Nursing Education, 2022, 19(2): 126-135.