脊髓损伤患者延续护理需求的研究进展

doi:10.3761/j.issn.1672-9234.2020.08.020

摘要/Abstract

摘要：

脊髓损伤是一种严重致残性疾病,患者出院时遗留不同程度健康问题,有较高延续护理需求。该文从延续护理需求的主要类型、评估工具、满足需求障碍等方面进行综述,以期为进一步开展临床相关研究,制订合理化延续护理方案提供参考。

关键词: 脊髓损伤, 延续护理, 需求, 综述

Key words: Spinal Cord Injury, Continuous Care, Needs, Review

刘素敏, 曹红十, 王海燕, 张欣婷, 杨静舒. 脊髓损伤患者延续护理需求的研究进展[J]. 中华护理教育, 2020, 17(8): 761-764.

参考文献 34

[1]	World Health Organization , International Spine Cord Society,Richard Levi. International Perspectives on Spinal Cord Injury[M]. Geneva:World Health Organization, 2013.
[2]	GBD 2016 Neurology Collaborators . Global,regional,and national burden of neurological disorders,1990-2016:a systematic analysis for the Global Burden of Disease Study 2016BD 2016 Neurology Collaborators. Global,regional,and national burden of neurological disorders,1990-2016:a systematic analysis for the Global Burden of Disease Study 2016[J]. Lancet Neurol, 2019,18(5):459-480. doi: 10.1016/S1474-4422(18)30499-X pmid: 30879893
[3]	Craven C, Balioussis C, Verrier MC , et al. Using scoping review methods to describe current capacity and prescribe change in Canadian SCI rehabilitation service delivery[J]. J Spinal Cord Med, 2012,35(5):392-399. doi: 10.1179/2045772312Y.0000000045
[4]	朱世琼, 艾艳, 李雨峰 , 等. 脊髓损伤患者延续护理的需求及护理干预[J]. 护理学杂志, 2014,29(16):83-85.
[5]	Sand A, Karlberg I, Kreuter M . Spinal cord injured persons' conceptions of hospital care,rehabilitation,and a new life situation[J]. Scand J Occup Ther, 2006,13(3):183-192. doi: 10.1080/11038120500542187 pmid: 17042466
[6]	van Loo MA, Post MW, Bloemen JH , et al. Care needs of persons with long-term spinal cord injury living at home in the Netherlands[J]. Spinal Cord, 2010,48(5):423-428. doi: 10.1038/sc.2009.142 pmid: 19884896
[7]	朱世琼, 艾艳, 李雨峰 , 等. 脊髓损伤患者延续护理的需求及护理干预[J]. 护理学杂志, 2014,29(16):83-85.
[8]	陈颖, 马风华, 田淑玲 . 脊髓损伤病人对胸肺物理治疗延续护理服务需求的调查分析[J]. 全科护理, 2016,14(25):2599-2601.
[9]	New PW, Seddon M, Redpath C , et al. Recommendations for spinal rehabilitation professionals regarding sexual education needs and preferences of people with spinal cord dysfunction:a mixed-methods study[J]. Spinal Cord,2016,54(12):1203-1209. [10] Lindberg J,Kreuter M,Taft C,et al. Patient participation in care and rehabilitation from the perspective of patients with spinal cord injury[J]. Spinal Cord, 2013,51(11):834-837.
[11]	魏丽巍, 夏艳萍, 方玉美 . 个体化康复护理指导对脊髓损伤患者康复积极性的影响[J]. 中国康复理论与实践, 2011,17(8):777-779.
[12]	刘晓艳, 李奎成, 王杨 , 等. 脊髓损伤住院患者康复辅助器具应用情况分析[J]. 中国康复医学杂志, 2014,29(6):533-536.
[13]	Alwashmi AH. Vocational rehabilitation awareness among spinal cord injury male patients in Saudi Arabia:a brief communica-tion[J]. Cureus, 2019,11(1):e3886. DOI: 10.7759/cureus.3886.[14] Kennedy P,Sherlock O,McClelland M,et al. A multi-centre study of the community needs of people with spinal cord injuries:the first 18 months[J]. Spinal Cord,2010,48(1):15-20. [15] 雒生杰,李寿霖,孟申,等. 青壮年男性四肢瘫痪患者血脂状况调查[J]. 中国康复医学杂志,2009,24(11):1009-1011. doi: 10.7759/cureus.3886 pmid: 30911443
[16]	于雪, 陈楠, 王淑新 . 脊髓损伤患者康复期潜在心理问题及疏导方法[J]. 中国矫形外科杂志, 2020,28(4):383-384.
[17]	Otis C, Marchand A, Courtois F . Risk factors for posttraumatic stress disorder in persons with spinal cord injury[J]. Top Spinal Cord Inj Rehabil, 2012,18(3):253-263. doi: 10.1310/sci1803-253 pmid: 23459174
[18]	Le J, Dorstyn D . Anxiety prevalence following spinal cord injury:a meta-analysis[J]. Spinal Cord, 2016,54(8):626. doi: 10.1038/sc.2016.69 pmid: 27492673
[19]	Dickson A, Ward R , O'Brien G,et al. Difficulties adjusting to post-discharge life following a spinal cord injury:an interpretative phenomenological analysis[J]. Psychol Health Med, 2011,16(4):463-474. doi: 10.1080/13548506.2011.555769
[20]	Sweet SN, Noreau L, Leblond J , et al. Peer support need fulfillment among adults with spinal cord injury:relationships with participation,life satisfaction and individual characteristics[J]. Disabil Rehabil, 2016,38(6):558-565. doi: 10.3109/09638288.2015.1049376 pmid: 26017541
[21]	Cox RJ, Amsters DI, Pershouse KJ . The need for a multidisciplinary outreach service for people with spinal cord injury living in the community[J]. Clin Rehabil, 2001,15(6):600-606. doi: 10.1191/0269215501cr453oa pmid: 11777090
[22]	Siegert RJ, Jackson DM, Turner-Stokes L . The Needs and Provision Complexity Scale:a first psychometric analysis using multicentre data[J]. Clin Rehabil, 2014,28(7):687-695. doi: 10.1177/0269215513513601 pmid: 24452703
[23]	Turner-Stokes L , McCrone P,Jackson DM,et al. The Needs and Provision Complexity Scale:a multicentre prospective cohort analysis of met and unmet needs and their cost implications for patients with complex neurological disability[J]. BMJ Open, 2013,3(2):e002353. doi: 10.1136/bmjopen-2012-002353 pmid: 23435796
[24]	van Walsem MR, Howe EI, Ruud GA , et al. Health-related qua-lity of life and unmet healthcare needs in Huntington's disease[J]. Health Qual Life Outcomes, 2017,15(1):6. doi: 10.1186/s12955-016-0575-7 pmid: 28069034
[25]	Turner-Stokes L, Tonge P, Nyein K , et al. The Northwick Park Dependency Score(NPDS):a measure of nursing dependency in rehabilitation[J]. Clin Rehabil, 1998,12(4):304-318. doi: 10.1191/026921598669173600 pmid: 9744666
[26]	Turner-Stokes L, Nyein K, Halliwell D . The Northwick Park Care Needs Assessment(NPCNA):a directly costable outcome measure in rehabilitation[J]. Clin Rehabil,1999,13(3):253-267. , 2010,42(10):936-943.
[28]	Siegert RJ, Turner-Stokes L. Psychometric evaluation of the northwick park dependency scale[J]. J Rehabil Med, 2010,42(10):936-943. doi: 10.2340/16501977-0602 pmid: 21031290
	Li IC, Lien IN, Lin YC . Long-term care services needs for spi-nal-cord injury patients in Taiwan[J]. J Nurs Res, 2001,9(4):127-138.
[29]	Middleton JW, McCormick M, Engel S, et al. Issues and challenges for development of a sustainable service model for people with spinal cord injury living in rural regions[J]. Arch Phys Med Rehabil, 2008,89(10):1941-1947. doi: 10.1016/j.apmr.2008.04.011 pmid: 18929022
[30]	Whalley-Hammell K . Experience of rehabilitation following spinal cord injury:a meta-synjournal of qualitative findings[J]. Spinal Cord, 2007,45(4):260-274. doi: 10.1038/sj.sc.3102034 pmid: 17310257
[31]	雷佳芳, 莫蓓蓉 . 延续性护理发展现况[J]. 护理研究, 2015,29(1A):12-14.
[32]	Coleman EA, Smith JD, Frank JC , et al. Development and test-ing of a measure designed to assess the quality of care transitions[J]. Int J Integr Care, 2002,2:e02.DOI: 10.5334/ijic.60. doi: 10.5334/ijic.60 pmid: 16896392
[33]	国务院. 中国防治慢性病中长期规划(2017-2025年)[EB/OL].[ 2020- 01- 21]. http://www.gov.cn/zhengce/content/2017-02/14/con-tent_5167886.htm .
[34]	Cameron JI, Gignac MAM . “Timing It Right”:a conceptual fra-mework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home[J]. Patient Educ Couns, 2008,70(3):305-314. doi: 10.1016/j.pec.2007.10.020

脊髓损伤患者延续护理需求的研究进展

HTML阅读

PDF下载

赞

可视化

摘要/Abstract

引用本文

使用本文

参考文献 34

相关文章 15

Metrics

本文评价

推荐阅读 10

[1]	李欣, 庞冬, 陆宇晗, 马晓晓, 候晓婷. 临终护理培训课程的研究进展[J]. 中华护理教育, 2021, 18(9): 860-864.
[2]	韦帅芳, 徐克珮, 杨玉洁, 刘华平. 虚拟社区在慢性病患者健康教育中的应用进展[J]. 中华护理教育, 2021, 18(9): 789-794.
[3]	吴晗, 袁越, 乔建红, 王红, 杨莎, 许翠萍. 运动疗法改善帕金森病患者跌倒恐惧的研究进展[J]. 中华护理教育, 2021, 18(9): 795-798.
[4]	章琛越,朱雪娇. 减少脑卒中患者延迟就医行为健康教育的研究进展[J]. 中华护理教育, 2021, 18(8): 759-764.
[5]	张倍倍,韦伟,白杨,胡方舟,黄文贞. 青少年糖尿病患者健康管理现状及展望[J]. 中华护理教育, 2021, 18(7): 664-668.
[6]	张一帆, 赵培, 郭员志, 李丹, 院文倩, 李玉环. 乳腺癌患者家庭主要照顾者照顾负荷的研究进展[J]. 中华护理教育, 2021, 18(5): 470-474.
[7]	刘柯显,徐红贞. 儿童术后谵妄评估的研究进展[J]. 中华护理教育, 2021, 18(4): 381-384.
[8]	梁和静,黄金,蒋凤,张婷,赵梅村. 以视频为基础的健康教育应用进展[J]. 中华护理教育, 2021, 18(3): 284-288.
[9]	马珂珂,郭园丽,杨彩侠. 护理研究文化的研究现状及启示[J]. 中华护理教育, 2021, 18(2): 182-186.
[10]	马登慧,张军,史宇欣,张乖. 严肃游戏在护理教育中的应用进展[J]. 中华护理教育, 2021, 18(10): 942-945.
[11]	郑小源,刘佳欣,唐璟,黄卓尔,刘莉娟,丛丽. 机械瓣膜置换术后患者抗凝药物使用依从性的研究进展[J]. 中华护理教育, 2021, 18(10): 946-950.
[12]	林琴,王童语,夏开萍,李旭英,袁忠. 输液港原发性导管异位相关因素及防治的研究进展[J]. 中华护理教育, 2021, 18(10): 956-960.
[13]	杨桂华, 袁玮, 梁亚慧, 常宗霞. 个案管理模式的应用现状与启示[J]. 中华护理教育, 2021, 18(1): 92-96.
[14]	冯婷婷,张欣,谭玲玲,肖丽艳,焦静,刘华平. 临床护理教师胜任力研究的范围综述[J]. 中华护理教育, 2020, 17(9): 857-864.
[15]	杨冰香,刘烁,王金娜,李婷,徐爱京,方雅璇,金三丽. 模拟强化医学跨专业教育的研究进展[J]. 中华护理教育, 2020, 17(9): 799-802.