抽动障碍儿童主要照顾者家庭坚韧力及影响因素研究

doi:10.3761/j.issn.1672-9234.2021.03.018

摘要/Abstract

摘要：

目的探讨抽动障碍儿童主要照顾者家庭坚韧力现状及其影响因素。方法采用一般资料调查表、耶鲁抽动程度综合量表、家庭坚韧力量表以及亲职压力简表对167名抽动障碍患儿主要照顾者进行问卷调查。结果抽动障碍患儿照顾者家庭坚韧力总分为（40.14±5.89）分。家庭坚韧力得分与亲职压力得分呈负相关（P<0.01）;多元线性回归分析结果显示,患儿疾病严重程度以及主要照顾者亲职压力、学历3个因子可解释抽动障碍儿童主要照顾者家庭坚韧力57.4%的变异量。结论抽动障碍患儿主要照顾者家庭坚韧力处于偏低水平,提示护士在关注患儿疾病本身同时也应重视评估其主要照顾者家庭坚韧力水平,通过对照顾者进行疾病知识的指导与心理疏导,降低其亲职压力,为患儿提供良好的家庭环境,促进患儿疾病康复。

关键词: 问卷调查, 影响因素分析, 抽搐性运动障碍, 儿童, 家庭韧性, 亲职压力

Abstract:

Objective To explore the family hardiness of caregivers of children with tic disorder. Methods A total of 167 caregivers of children with tic disorder were investigated with general information questionnaire,Yale Global Tic Severity Scale,Family Hardiness Index（FHI） and Parenting Stress Index Short Form（PSI-SF）. Results The total score of Family Hardiness Index of caregivers was（40.14±5.89）. The score of FHI was nega-tively correlated with the total score of PSI-SF（P<0.01）. The results of multiple stepwise linear regression analysis showed that the parenting stress,the severity of disease and the education background of the main caregivers could predict the 57.4% variation of family hardiness. Conclusion The family hardiness of caregivers of children with tic disorder is at a low level. We should pay attention to the family hardiness as well as the disease itself. Through the guidance of disease knowledge and psychological guidance to children’s caregivers,we can reduce the level of parenting stress,provide a good family environment,and promote the recovery of children’s disease.

Key words: Questionnaires, Root Cause Analysis, Tic Disorders, Children, Family hardiness, Parenting stress

叶秀娟,王小燕,刘桂华,林敏,黄舒童,赵江,王婷婷. 抽动障碍儿童主要照顾者家庭坚韧力及影响因素研究[J]. 中华护理教育, 2021, 18(3): 279-283.

YE Xiu-juan,WANG Xiao-yan,LIU Gui-hua,LIN Min,HUANG Shu-tong,ZHAO Jiang,WANG Ting-ting. Family hardiness and its influecing factors of caregivers of children with tic disorder[J]. Chinese Journal of Nursing Education, 2021, 18(3): 279-283.

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