虚拟社区在慢性病患者健康教育中的应用进展

doi:10.3761/j.issn.1672-9234.2021.09.004

摘要/Abstract

摘要：

随着互联网的发展,患者之间及患者与医疗人员之间的线上互动不断增多,虚拟社区随之形成。近年来越来越多的研究者开始将其应用在慢性病患者健康教育领域,减轻了患者焦虑,提高了患者生活质量。因此,该文将对虚拟社区在慢性病患者健康教育中的应用情况进行综述,包括虚拟社区的概念、种类、应用现状和现存问题,以期为医疗人员更好地在国内开展基于互联网平台的慢性病患者健康教育提供借鉴。

关键词: 慢性病, 健康教育, 综述, 虚拟社区

Abstract:

With the development of the Internet,the online interactions between patients and medical staff are increasing. Virtual community is then beginning to emerge. In recent years,more and more researchers have begun to apply it in the field of health education for patients with chronic diseases. The virtual community can reduce the anxiety of patients,improves their quality of life. Therefore,this paper summarizes the virtual community in health education of patients with chronic diseases including concept introduction,types,application status and existing problems. We hope to provide references in Internet-based health education of patients with chronic diseases for Chinese medical staff.

Key words: Chronic Disease, Health Education, Review, Virtual community

韦帅芳, 徐克珮, 杨玉洁, 刘华平. 虚拟社区在慢性病患者健康教育中的应用进展[J]. 中华护理教育, 2021, 18(9): 789-794.

WEI Shuai-fang, XU Ke-pei, YANG Yu-jie, LIU Hua-ping. A review of virtual community in the field of health education for patients with chronic diseases[J]. Chinese Journal of Nursing Education, 2021, 18(9): 789-794.

参考文献 46

[1]	曹新西, 徐晨婕, 侯亚冰, 等. 1990—2025年我国高发慢性病的流行趋势及预测[J]. 中国慢性病预防与控制, 2020, 28(1):14-19.
	Cao XX, Xu CJ, Hou YB, et al. The epidemic trend and prediction of chronic diseases with high incidence in China from 1990 to 2025[J]. Chin J Prev Control Chronic Dis, 2020, 28(1):14-19.
[2]	国务院新闻办公室. 《中国居民营养与慢性病状况报告（2020年）》发布会图文实录[EB/OL]. [2020-12-23]. http://www.scio.gov.cn/xwfbh/xwbfbh/wqfbh/42311/44583/wz44585/Document/1695276/1695276.htm .
[3]	周佳. 社区基本公共卫生服务中慢性病管理现状及对策分析[J]. 中国卫生产业, 2019, 16(36):145-146,149.
	Zhou J. Analysis on the status and countermeasures of chronic disease management in community basic public health services[J]. China Heal Ind, 2019, 16(36):145-146,149.
[4]	Lin CM, Feng W. Assessment of short- and long-term outcomes of patients hospitalized with intracerebral hemorrhage[J]. Curr Neurovasc Res, 2012, 9(1):42-46. doi: 10.2174/156720212799297065
[5]	黄靖, 陈宪泽, 沈富儿, 等. 基于移动互联网的社区慢性病健康教育模式研究[J]. 中国健康教育, 2020, 36(6):580-583.
	Huang J, Chen XZ, Shen FE, et al. Research on the model of community chronic disease health education based on mobile Internet[J]. Chin J Heal Educ, 2020, 36(6):580-583.
[6]	骆惠玉, 张风贞, 齐榕, 等. “互联网+”肿瘤患者健康教育方案的构建[J]. 中华护理杂志, 2017, 52(12):1482-1485.
	Luo HY, Zhang FZ, Qi R, et al. The establishment of “Internet Plus” health education programme for cancer patients[J]. Chin J Nurs, 2017, 52(12):1482-1485.
[7]	Wieldraaijer T, Duineveld LAM, Bemelman WA, et al. Information needs and information seeking behaviour of patients during follow-up of colorectal cancer in the Netherlands[J]. J Cancer Surviv, 2019, 13(4):603-610. doi: 10.1007/s11764-019-00779-5 pmid: 31286386
[8]	柴晋颖, 王飞绒. 虚拟社区研究现状及展望[J]. 情报杂志, 2007, 26(5):101-103.
	Chai JY, Wang FR. The investigation status and forecast of virtual communities[J]. J Inf, 2007, 26(5):101-103.
[9]	俞文敏, 王杰, 周宏宇. 虚拟社区健康知识共享的优势性[J]. 中华现代护理杂志, 2010, 16(14):1700-1701.
	Yu WM, Wang J, Zhou HY. Advantages of health knowledge sharing in virtual community[J]. Chin J Mod Nurs, 2010, 16(14):1700-1701.
[10]	Gustafson DH, Hawkins RP, Boberg EW, et al. CHESS:10 years of research and development in consumer health informatics for broad populations,including the underserved[J]. Int J Med Inform, 2002, 65(3):169-177. pmid: 12414016
[11]	Jewkes R, Murcott A. Meanings of community[J]. Social Science & Medicine, 1996, 43(4):555. doi: 10.1016/0277-9536(95)00439-4
[12]	Robert P. Online communities[J]. Technol Soc, 2004, 26(1):51-65. doi: 10.1016/j.techsoc.2003.10.005
[13]	Howard R. The virtual community[M]. London:Minerva, 1994:1-2.
[14]	Preece J. Sociability and usability in online communities:determining and measuring success[J]. Behav Inf Technol, 2001, 20(5):347-356. doi: 10.1080/01449290110084683
[15]	Lee FSL, Vogel D, Limayem M. Virtual community informatics:a review and research agenda[J]. Jitta, 2003, 5(1):47-61.
[16]	徐小龙, 王方华. 虚拟社区研究前沿探析[J]. 外国经济与管理, 2007, 29(9):10-16.
	Xu XL, Wang FH. Research frontier of virtual community[J]. Foreign Econ Manag, 2007, 29(9):10-16.
[17]	马骋宇. 在线医疗社区发展现状浅析[J]. 中国医院管理, 2018, 38(5):58-60.
	Ma CY. Research on the development of online health communities in China[J]. Chin Hosp Manag, 2018, 38(5):58-60.
[18]	Demiris G. The diffusion of virtual communities in health care:concepts and challenges[J]. Patient Educ Couns, 2006, 62(2):178-188. pmid: 16406472
[19]	徐孝婷, 赵宇翔, 朱庆华. 在线健康社区老年用户健康信息需求实证研究[J]. 图书情报工作, 2019, 63(10):87-96.
	Xu XT, Zhao YX, Zhu QH. An empirical study on health information needs of elderly users in online health communities[J]. Libr Inf Serv, 2019, 63(10):87-96.
[20]	Tamí-Maury I, Brown L, Lapham H, et al. Community-based participatory research through virtual communities[J]. J Commun Healthc, 2017, 10(3):188-194. doi: 10.1080/17538068.2017.1337604 pmid: 30386424
[21]	Schubert P, Ginsburg M. Virtual communities of transaction:the role of personalization in electronic commerce[J]. Electron Mark, 2000, 10(1):45-55. doi: 10.1080/10196780050033971
[22]	Li H. Virtual community studies:a literature review,synthesis and research agenda[C]. AMCIS 2004 Proceedings, 2004: 324.
[23]	Spaulding TJ. How can virtual communities create value for business?[J]. Electron Commer Res Appl, 2010, 9(1):38-49. doi: 10.1016/j.elerap.2009.07.004
[24]	马颖, 傅华, 江月英. 网络时代健康教育应关注的领域:虚拟社区[J]. 中国健康教育, 2008, 24(4):296-297,299.
	Ma Y, Fu H, Jiang YY. Virtual community:valuable study area in health education in information age[J]. Chin J Heal Educ, 2008, 24(4):296-297,299.
[25]	Gupta T, Schapira L. Online communities as sources of peer support for people living with cancer:a commentary[J]. J Oncol Pract, 2018: JOP1800261.
[26]	Park KA, Eum SY, Oh H, et al. Factors affecting online health community participation behavior in patients with thyroid cancer[J]. PLoS One, 2020, 15(6):e0235056. doi: 10.1371/journal.pone.0235056
[27]	Litchman ML, Edelman LS, Donaldson GW. Effect of diabetes online community engagement on health indicators:cross-sectional study[J]. JMIR Diabetes, 2018, 3(2):e8. doi: 10.2196/diabetes.8603
[28]	Litchman ML, Edelman LS. Perceptions of the diabetes online community’s credibility,social capital,and help and harm:cross-sectional comparison between baby boomers and younger adults[J]. JMIR Aging, 2019, 2(2):e10857. doi: 10.2196/10857
[29]	Willis E. Patients’ self-efficacy within online health communities:facilitating chronic disease self-management behaviors through peer education[J]. Health Commun, 2016, 31(3):299-307. doi: 10.1080/10410236.2014.950019 pmid: 26325224
[30]	李高叶, 应燕萍. 同伴教育在慢性病病人健康管理中的应用现状及展望[J]. 循证护理, 2017, 3(6):584-589.
	Li GY, Ying YP. Application status quo and expectation of peer education in health management of patients with chronic diseases[J]. Chin Evid-Based Nurs, 2017, 3(6):584-589.
[31]	Lepore SJ, Buzaglo JS, Lieberman MA, et al. Comparing standard versus prosocial Internet support groups for patients with breast cancer:a randomized controlled trial of the helper therapy principle[J]. J Clin Oncol, 2014, 32(36):4081-4086. doi: 10.1200/JCO.2014.57.0093
[32]	Han J, Guo GF, Hong L. Impact of professionally facilitated peer support for family carers of people with dementia in a We- Chat virtual community[J]. J Telemed Telecare, 2020: 1357633X20910830.
[33]	Høybye MT, Johansen C, Tjørnhøj-Thomsen T. Online interaction. Effects of storytelling in an Internet breast cancer support group[J]. Psychooncology, 2005, 14(3):211-220. pmid: 15386774
[34]	黄相刚, 李英华, 李莉, 等. 我国6省糖尿病患者糖尿病信息获取及网络利用现状调查[J]. 中国健康教育, 2014, 30(1):20-22.
	Huang XG, Li YH, Li L, et al. Survey the current state about information acquisition and Internet utilization of diabetic patients in six provinces of China[J]. Chin J Heal Educ, 2014, 30(1):20-22.
[35]	白杨, 邓贵仕. 虚拟实践社区中知识转移的语义交互模型研究[J]. 情报科学, 2012, 30(9):1348-1352.
	Bai Y, Deng GS. Research on semantic interaction model of knowledge transfer in virtual communities of practice[J]. Inf Sci, 2012, 30(9):1348-1352.
[36]	Lewiecki EM, Rochelle R, Bouchonville MF, et al. Leveraging scarce resources with bone health TeleECHO to improve the care of osteoporosis[J]. J Endocr Soc, 2017, 1(12):1428-1434. doi: 10.1210/js.2017-00361 pmid: 29264466
[37]	Ranmuthugala G, Plumb JJ, Cunningham FC, et al. How and why are communities of practice established in the healthcare sector? A systematic review of the literature[J]. BMC Health Serv Res, 2011, 11:273. doi: 10.1186/1472-6963-11-273 pmid: 21999305
[38]	Arora S, Kalishman S, Thornton K, et al. Expanding access to hepatitis C virus treatment:Extension for Community Healthcare Outcomes(ECHO) project:disruptive innovation in specialty care[J]. Hepatology, 2010, 52(3):1124-1133. doi: 10.1002/hep.23802
[39]	Bermejo-Caja CJ, Koatz D, Orrego C, et al. Acceptability and feasibility of a virtual community of practice to primary care professionals regarding patient empowerment:a qualitative pilot study[J]. BMC Health Serv Res, 2019, 19(1):403. doi: 10.1186/s12913-019-4185-z pmid: 31221215
[40]	马骋宇. 在线医疗社区服务利用及转化研究:以好大夫在线为例[J]. 中国卫生政策研究, 2016, 9(11):70-73.
	Ma CY. An empirical study on the utilization of online health community and its conversion into the traditional health system:a case study of haodf. com[J]. Chin J Heal Policy, 2016, 9(11):70-73.
[41]	赵加奎, 林军, 陆瑛, 等. 新媒体在健康传播中的应用现状及对策[J]. 中国健康教育, 2016, 32(10):919-921.
	Zhao JK, Lin J, Lu Y, et al. A Qualitative study on applications and strategies of new medias use in health communication[J]. Chin J Heal Educ, 2016, 32(10):919-921.
[42]	王玮, 梁时荣. 利用网上问诊平台开展健康教育的实践与体会[J]. 中国健康教育, 2014, 30(12):1145-1146.
	Wang W, Liang SR. The practice and experience of using online inquiry in health education[J]. Chin J Heal Educ, 2014, 30(12):1145-1146.
[43]	刘浩, 王世奇, 段红梅. 哮喘儿童家长的疾病需求研究[J]. 中华现代护理杂志, 2020, 26(15):1961-1966.
	Liu H, Wang SQ, Duan HM. Study on the disease needs in parents of children with asthma[J]. Chin J Mod Nurs, 2020, 26(15):1961-1966.
[44]	陆泉, 李易时, 陈静, 等. 在线医疗社区患者择医行为影响因素研究[J]. 图书情报工作, 2019, 63(8):87-95.
	Lu Q, Li YS, Chen J, et al. Study on the influencing factors of the patient’s selection of doctors in online health care community[J]. Libr Inf Serv, 2019, 63(8):87-95.
[45]	Rolls K, Hansen M, Jackson D, et al. How health care professionals use social media to create virtual communities:an integrative review[J]. J Med Internet Res, 2016, 18(6):e166. DOI: 10.2196/jmir.5312. doi: 10.2196/jmir.5312
[46]	郑秋莹, 孔军辉. 患者在线社区:医疗服务创新的新途径[J]. 医院管理论坛, 2013, 30(4):64-59.
	Zheng QY, Patient online communities：a new way for healthcare service innovation[J]. Hosp Manag Forum, 2013, 30(4):64-59.