乳腺癌患者配偶照护体验的质性研究

doi:10.3761/j.issn.1672-9234.2021.04.015

摘要/Abstract

摘要：

目的探究乳腺癌患者配偶在不同阶段的照护体验。方法采用半结构式访谈对13名乳腺癌患者配偶的照护体验进行深入了解,采用传统内容分析法分析资料。结果凝练出5个主题：长期照护的无助感（疲于医院住址奔波、独自照顾的无助、无力改变现状、对现实妥协）、难以胜任照顾重任（照顾信心不足、照顾能力有限、缺乏照护知识）、角色紊乱（工作者角色削弱、照顾者角色加强）、缺乏社会支持（社会支持水平低下、社会支持利用度低）和创伤后成长（婚姻关系加强、亲子关系增进、个人力量增强）,多维度展现了配偶的照护体验。结论配偶作为照顾者中特殊的群体,在照护不同阶段受到身、心、社会等多方面问题的困扰,医疗保健团队应重视配偶的照顾体验,并根据其需求提供一定帮助,促使夫妻双方早日适应病后生活。

关键词: 乳腺肿瘤, 医疗护理提供者, 配偶, 定性研究

Abstract:

Objective To explore the experience of caring for breast cancer patients in patients’ spouses. Methods Semi-structured interview was conducted in 13 spouses of breast cancer patients. Content analysis was used to analyze the interview data. Results Five themes emerged from the data：helplessness of long-term care（being tired of rushing between the hospital and home,being helpless to care for patients by themselves,being powerless to change the current situation,and being compromised with the reality）,difficulty in taking on the care burden（limited confidence in caring,low ability in caring,and little knowledge in caring）,role disorders （weakened role in working,strengthened role in caring）,lack of social support（low level of social support and little utili-zation）,and post-traumatic growth（strengthened imitate relationship,parent-child relationship,and personal growth）. Conclusion Spouses who are the special caregiver of breast cancer patients are disturbed by physical,mental,social and other issues at different stages. The health care team should pay more attention to the spouse’s care experience and provide assistances according to their needs to encourage the couples to adapt to life after cancer as soon as possible.

Key words: Breast Neoplasms, Caregivers, Spouses, Qualitative Research

张丹妮,周佳欣,朱慧,陈肖敏. 乳腺癌患者配偶照护体验的质性研究[J]. 中华护理教育, 2021, 18(4): 363-368.

ZHANG Dan-ni,ZHOU Jia-xin,ZHU Hui,CHEN Xiao-min. The experience of caring for breast cancer patients in patients’ spouses：a qualitative study[J]. Chinese Journal of Nursing Education, 2021, 18(4): 363-368.

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