eISSN 2097-6054 ISSN 1672-9234 CN 11-5289/R
Responsible Institution：China Association for Science and Technology
Publishing:Chinese Nursing Journals Publishing House Co.,Ltd.
Sponsor：Chinese Nursing Association
Source journal for Chinese Science Citation Database
China Academic Journals Full-text Database
China Core Journal Alternative Database
Scopus
Chinese Journal of Nursing Education

Chinese Journal of Nursing Education >

2021 , Vol. 18 >Issue 4: 363 - 368

DOI: https://doi.org/10.3761/j.issn.1672-9234.2021.04.015

Clinical Practice

The experience of caring for breast cancer patients in patients’ spouses：a qualitative study

  • Dan-ni ZHANG ,
  • Jia-xin ZHOU ,
  • Hui ZHU ,
  • Xiao-min CHEN
Expand

Received date: 2020-07-08

  Online published: 2021-05-07

Fold

Abstract

Objective To explore the experience of caring for breast cancer patients in patients’ spouses. Methods Semi-structured interview was conducted in 13 spouses of breast cancer patients. Content analysis was used to analyze the interview data. Results Five themes emerged from the data：helplessness of long-term care（being tired of rushing between the hospital and home,being helpless to care for patients by themselves,being powerless to change the current situation,and being compromised with the reality）,difficulty in taking on the care burden（limited confidence in caring,low ability in caring,and little knowledge in caring）,role disorders （weakened role in working,strengthened role in caring）,lack of social support（low level of social support and little utili-zation）,and post-traumatic growth（strengthened imitate relationship,parent-child relationship,and personal growth）. Conclusion Spouses who are the special caregiver of breast cancer patients are disturbed by physical,mental,social and other issues at different stages. The health care team should pay more attention to the spouse’s care experience and provide assistances according to their needs to encourage the couples to adapt to life after cancer as soon as possible.

Key words： Breast Neoplasms; Caregivers; Spouses; Qualitative Research

Cite this article

Dan-ni ZHANG , Jia-xin ZHOU , Hui ZHU , Xiao-min CHEN . The experience of caring for breast cancer patients in patients’ spouses：a qualitative study[J]. Chinese Journal of Nursing Education, 2021 , 18(4) : 363 -368 . DOI: 10.3761/j.issn.1672-9234.2021.04.015

References

[1] 杜建姝, 王嘉艺, 王学梅, 等. 乳腺癌主要危险因素的流行趋势与一级预防[J]. 中国初级卫生保健, 2019,33(7):43-45,59.
[1] Du JS, Wang JY, Wang XM, et al. Epidemic trend and primary prevention of major risk factors for breast cancer[J]. Chin Prim Heal Care, 2019,33(7):43-45,59.
[2] 师金, 梁迪, 李道娟, 等. 全球女性乳腺癌流行情况研究[J]. 中国肿瘤, 2017,26(9):683-690.
[2] Shi J, Liang D, Li DJ, et al. Epidemiological status of global female breast cancer[J]. China Cancer, 2017,26(9):683-690.
[3] Dorros SM, Segrin C, Badger TA. Cancer survivors’ and part-ners’ key concerns and quality of life[J]. Psychol Health, 2017,32(11):1407-1427.
[4] 杨敏, 兰波, 孙晓莹, 等. 181例乳腺癌术后辅助化疗患者家庭照顾者的心理状况分析[J]. 中国临床医生杂志, 2020,48(9):1059-1062.
[4] Yang M, Lan B, Sun XY, et al. Analysis of psychological status of family caregivers of 181 cases of breast cancer patients with adjuvant chemotherapy[J]. Chin J Clin, 2020,48(9):1059-1062.
[5] Gregorio SW, Carpenter KM, Dorfman CS, et al. Impact of breast cancer recurrence and cancer-specific stress on spouse health and immune function[J]. Brain Behav Immun, 2012,26(2):228-233.
[6] 李爽. 基于IKAP理论协同健康教育对乳腺癌患者住院满意度影响研究[D]. 太原:山西医科大学, 2020.
[6] Li S. Study on the effect of IKAP theory and collaborative health education on inpatient satisfaction of breast cancer patients[D]. Taiyuan:Shanxi Medical University, 2020.
[7] 谭相红. 配偶支持教育联合强化心理支持对乳腺癌术后放化疗患者心理韧性与疾病进展恐惧的影响[J]. 护理实践与研究, 2020,17(18):36-38.
[7] Tan XH. Effect of spouse’s support education combined with strengthened psychological support on psychological resilience and fear of disease progression in patients undergoing radiotherapy and chemotherapy after breast cancer operation[J]. Nurs Pract Res, 2020,17(18):36-38.
[8] 王晶晶, 高丽. 乳腺癌患者夫妻二元应对癌症体验质性研究的系统评价和Meta整合[J]. 中华现代护理杂志, 2019,25(35):4571-4578.
[8] Wang JJ, Gao L. A systematic review and Meta-analysis of qualitative research on dyadic coping cancer experience in breast cancer patients and their spouse[J]. Chin J Mod Nurs, 2019,25(35):4571-4578.
[9] Yoshimochi LTB, Santos MAD, Loyola EACD, et al. The expe-rience of the partners of women with breast cancer[J]. Rev Esc Enferm USP, 2018,52:e03366.
[10] 庄鑫, 赵维瑜, 冯丹惠. 心理干预对乳腺癌术后患者及其配偶生活质量的影响[J]. 海南医学, 2014,25(5):776-778.
[10] Zhuang X, Zhao WY, Feng DH. Eeffect of psychological intervention on the postoperative quality of life of patients with breast cancer and their spouses[J]. Hainan Med J, 2014,25(5):776-778.
[11] 邾萍, 付菊芳, 王雁, 等. 乳腺癌患者配偶的生活质量及其影响因素[J]. 解放军护理杂志, 2013,30(3):1-5,34.
[11] Zhu P, Fu JF, Wang Y, et al. Quality of life of spouses of women with breast cancer and its influencing factors[J]. Nurs J Chin PLA, 2013,30(3):1-5,34.
[12] 黄海珊, 汪晖, 李玲, 等. 医护人员对脑卒中病人适时需求认知调查的质性研究[J]. 现代临床护理, 2020,19(2):8-14.
[12] Huang HS, Wang H, Li L, et al. Medical staff’s cognition on timing-it-right needs of stroke patients[J]. Mod Clin Nurs, 2020,19(2):8-14.
[13] Hsieh HF, Shannon SE. Three approaches to qualitative content analysis[J]. Qual Heal Res, 2005,15(9):1277-1288.
[14] 张俊. 晚期胰腺癌不能手术患者照顾者负担体验的质性研究[J]. 中国实用护理杂志, 2017,33(11):842-845.
[14] Zhang J. Qualitative study on the experiences of caregivers burden of patients with advanced pancreatic cancer who can not be operated[J]. Chin J Pract Nurs, 2017,33(11):842-845.
[15] 竹林蓉. 激励式护理干预联合配偶支持对乳腺癌手术患者负性情绪及生存质量的影响[J]. 中国全科医学, 2019,22(A01):245-247.
[15] Zhu LR. Effects of encouraging nursing intervention with spouse support on negative emotion and quality of life in patients undergoing breast cancer surgery[J]. Chin Gen Pract, 2019,22(A01):245-247.
[16] 贾辛婕, 王晴, 何欣, 等. 乳腺癌患者亲属照顾者照顾负担及护理干预的研究进展[J]. 中国实用护理杂志, 2018,34(16):1276-1280.
[16] Jia XJ, Wang Q, He X, et al. Research progress on care burden and nursing intervention of relatives of breast cancer patients[J]. Chin J Pract Nurs, 2018,34(16):1276-1280.
[17] Arenella K, Steffen AM. Self-reassurance and self-efficacy for controlling upsetting thoughts predict depression,anxiety,and perceived stress in help-seeking female family caregivers[J]. Int Psychogeriatr, 2020,32(2):229-240.
[18] 李萍, 郭瑜洁, 唐青, 等. 乳腺癌化疗患者配偶希望体验的质性研究[J]. 护士进修杂志, 2017,32(17):1622-1625.
[18] Li P, Guo YJ, Tang Q, et al. A qualitative study of spouses of breast cancer chemotherapy patients wishing to experience[J]. J Nurses Train, 2017,32(17):1622-1625.
[19] Smith R, Drennan V, Mackenzie A, et al. The impact of befrien-ding and peer support on family carers of people living with dementia:a mixed methods study[J]. Arch Gerontol Geriatr, 2018,76:188-195.
[20] 孙琼, 胡慧. 老年痴呆患者照顾者创伤后成长的质性研究[J]. 现代临床护理, 2015,14(8):42-45,46.
[20] Sun Q, Hu H. Qualitative research of post-traumatic growth in caregivers of dementia patients[J]. Mod Clin Nurs, 2015,14(8):42-45,46.
[21] 黄秀琼. 信息与心理支持对乳腺癌患者配偶创伤后成长水平与自我感受负担的影响[J]. 国际护理学杂志, 2019,38(23):3919-3922.
[21] Huang XQ. The influence of information and psychological support on post-traumatic growth and self-perceived burden of spouses of breast cancer patients[J]. Int J Nurs, 2019,38(23):3919-3922.
Options
Outlines

/

〈 〉