照顾者参与脑卒中患者自我护理过程体验的研究
收稿日期: 2023-02-17
网络出版日期: 2024-01-15
基金资助
国家自然科学基金面上项目(72174184)
A descriptive qualitative study on caregivers’ participation in self-care of stroke survivors
目的 了解照顾者参与脑卒中患者自我护理的真实体验,为制订更具针对性的脑卒中患者与照顾者二元自我护理干预方案提供参考。 方法 采用描述性质性研究方法,于2021年10月—12月对16名脑卒中照顾者进行半结构式访谈,运用定向内容分析法对资料进行分析。 结果 总访谈时长约为475 min,访谈录音转录为文字后总共50 982字。共提炼3个主题:照顾者在参与患者自我护理维持方面的无助感和责任感并存;照顾者在参与患者自我护理监测方面的消极与不安;照顾者在参与患者自我护理管理方面的获益感。 结论 照顾者在促进患者自我护理维持、监测和管理的过程中存在积极与消极的体验,需要得到外界的支持。未来研究应重视脑卒中照顾者在参与自我护理过程中的感受,以及可能的促进及障碍因素,进一步构建针对性的患者与照顾者二元自我护理干预方案,促进双方健康结局。
王文娜 , 张振香 , 刘博文 , 张杰 . 照顾者参与脑卒中患者自我护理过程体验的研究[J]. 中华护理教育, 2024 , 21(1) : 62 -67 . DOI: 10.3761/j.issn.1672-9234.2024.01.011
Objective To understand and describe the process of caregivers’ involvement in the self-care of stroke survivors, and to provide references for developing more targeted stroke survivor and caregiver dyadic self-care intervention programs. Methods A descriptive research method was used and the research team conducted semi-structured interviews with 16 stroke caregivers from October 2021 to December 2021. The data were analyzed by directional content analysis. Results Three themes were extracted:1) helplessness of caregivers in participating in patient self-care and maintenance; 2) caregivers’ indifference in participating in patient self-care monitoring; and 3) benefits of caregivers in participating in patient self-care management. Conclusion While caregivers make significant contributions to promoting patient self-care maintenance, monitoring, and management, they also encounter numerous obstacles and are in urgent need of external support. Future research should focus on understanding the facilitators and barriers perceived by stroke caregivers in their involvement in the self-care process. Furthermore, targeted dyadic self-care interventions for patients and caregivers should be developed to promote favorable health outcomes for both parties.
Key words: Stroke; Self-care; Caregiver; Contribution; Experience; Descriptive qualitative study
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