收稿日期: 2022-09-17
网络出版日期: 2023-11-17
A systematic review of the palliative care needs assessment tool for cancer patients
目的 系统评价癌症患者安宁疗护需求评估工具的测量属性。方法 计算机检索PubMed、Embase、Web of Science、CINAHL、Scopus、万方数据库、中国生物医学文献数据库、中国知网和维普数据库，全面检索2022年7月4日以前发表的有关癌症患者安宁疗护需求评估工具的测量属性评价研究。由2名研究者独立筛选文献，提取资料后根据基于共识的健康测量工具遴选标准指南对纳入评估工具的方法学质量及测量性能进行评价。结果 共纳入10项研究，涉及10个癌症患者安宁疗护需求评估工具，均未报告跨文化效度、测量误差及反应性。有高质量的证据证明晚期癌症病人需求评估问卷、修订后的中文版安宁疗护问题与需求问卷的内部一致性和中文版简易版安宁疗护问题与需求问卷结构效度为“不充分”，均被评为C级量表；其他7个量表均为B级量表。其中，中文版晚期癌症患者安宁疗护感知与需求量表有高等级证据表明其结构效度、内部一致性、假设检验为“充分”，测量属性报告更为全面。结论 与其他9个评估工具相比，中文版晚期癌症患者安宁疗护感知与需求量表测量属性报告较为全面，可推荐被暂时使用，但其测量属性还需进一步验证。
何佳丽 , 高静 , 吴晨曦 , 柏丁兮 , 罗欢 , 宫笑颜 , 王薇 . 癌症患者安宁疗护需求评估工具的系统评价[J]. 中华护理教育, 2023 , 20(11) : 1305 -1312 . DOI: 10.3761/j.issn.1672-9234.2023.11.004
Objective To systematically evaluate the measurement properties of the palliative care needs assessment tools for cancer patients. Methods Computer searches of databases were conducted to comprehensively search studies on the evaluation of measurement properties of the hospice needs assessment tool for cancer patients from their establishment to July 4，2022，including PubMed，Embase，Web of Science，CINAHL，Scopus，Wanfang Data，CBM，CNKI，and VIP. The literature was independently screened by two researchers，and the methodological quality and measurement properties of the included assessment tools were evaluated using COSMIN guideline-based information after extraction. Results A total of 10 studies were included，involving 10 scales assessing the palliative care needs with cancer patients. None of 10 assessment tools reported cross-cultural validity，measurement error，and responsiveness. Based on high-quality evidence，the internal consistency of "the evaluation questionnaire on demand of terminal cancer patients" and "the revised Chinese version of the problems and needs in palliative care questionnaire"，as well as the structural validity of the Chinese version of the PNPC-sv，were found to be “inadequate”. Therefore，the three scales were recommended as grade C. The other seven scales were recommended as grade B. Among them，the structural validity，internal consistency，and hypothesis testing of the Chinese version of the PPCI were found to be "adequate" based on high-quality evidence，and more balanced measurement properties were reported. Conclusion Compared with the other nine assessment scales，the Chinese version of the PPCI measurement attribute report is more comprehensive and can be recommended for provisional use，though needs further validation of measurement attribution.
Key words： Neoplasms; Palliative care needs; Assessment tools; Systematic review
| [1] | Sung H, Ferlay J, Siegel RL, et al. Global cancer statistics 2020:GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries[J]. CA Cancer J Clin, 2021, 71(3):209-249. |
| [2] | Wang T, Molassiotis A, Chung BPM, et al. Unmet care needs of advanced cancer patients and their informal caregivers:a syste-matic review[J]. BMC Palliat Care, 2018, 17(1):96. |
| [3] | Hui D, Bruera E. Models of palliative care delivery for patients with cancer[J]. J Clin Oncol, 2020, 38(9):852-865. |
| [4] | 卢美玲, 罗志芹. 终末期癌症病人安宁疗护需求研究进展[J]. 护理研究, 2022, 36(5):850-857. |
| [5] | Lyerly HK, Fawzy MR, Aziz Z, et al. Regional variation in iden-tified cancer care needs of early-career oncologists in China,India,and Pakistan[J]. Oncologist, 2015, 20(5):532-538. |
| [6] | Connor SR, Gwyther E. The worldwide hospice palliative care alliance[J]. J Pain Symptom Manage, 2018, 55(2S):S112-S116. |
| [7] | 张雪梅, 胡秀英. 我国安宁疗护的发展现状、存在的问题及发展前景[J]. 中华现代护理杂志, 2016, 22(34):4885-4888. |
| [8] | 姜姗, 马岭, 李忠,等. 安宁疗护实践中的医疗照护与灵性关怀[J]. 中国医学伦理学, 2019, 32(3):299-302. |
| [9] | Prinsen CAC, Mokkink LB, Bouter LM, et al. COSMIN guideline for systematic reviews of patient-reported outcome measures[J]. Qual Life Res, 2018, 27(5):1147-1157. |
| [10] | Mokkink LB, de Vet HCW, Prinsen CAC, et al. COSMIN Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures[J]. Qual Life Res, 2018, 27(5):1171-1179. |
| [11] | Terwee CB, Prinsen CAC, Chiarotto A, et al. COSMIN metho-dology for evaluating the content validity of patient-reported outcome measures:a Delphi study[J]. Qual Life Res, 2018, 27(5):1159-1170. |
| [12] | Alhazzani W, Guyatt G. An overview of the GRADE approach and a peek at the future[J]. Med J Aust, 2018, 209(7):291-292. |
| [13] | 陈祎婷, 沈蓝君, 彭健,等. 改良版定量系统评价证据分级方法对患者报告结局测量工具的评价[J]. 解放军护理杂志, 2020, 37(10):57-60. |
| [13] | Chen YT, Shen LJ, Peng J, et al. Modiffied GRADE evaluation of COSMIN method for patient reported outcome measures[J]. Nurs J Chin PLA, 2020, 37(10):57-60. |
| [14] | Osse BHP, Vernooij MJFJ, Schadé E, et al. Towards a new clinical tool for needs assessment in the palliative care of cancer patients:the PNPC instrument[J]. J Pain Symptom Manag, 2004, 28(4):329-341. |
| [15] | 付菊芳, 李婵娟, 张茹英,等. 晚期癌症病人需求评估问卷的综合评价[J]. 护理研究, 2005, 19(25):2274-2277. |
| [15] | Fu JF, Li CJ, Zhang RY, et al. Comprehensive evaluation on demand appraisal questionnaire in terminal cancer patients[J]. Chin Nurs Res, 2005, 19(25):2274-2277. |
| [16] | Osse BHP, Vernooij-Dassen MJFJ, Schadé E, et al. A practical instrument to explore patients’ needs in palliative care:the Problems and Needs in Palliative Care questionnaire—short version[J]. Palliat Med, 2007, 21(5):391-399. |
| [17] | 段娇博, 陈长生, 宋汉歌,等. 晚期癌症患者需求评估表简表ACNQ-29的制定[J]. 中国实用护理杂志, 2012, 28(22):84-86. |
| [18] | Milne D, Aranda S, Jefford M, et al. Development and valida-tion of a measurement tool to assess perceptions of palliative care[J]. Psycho-Oncology, 2013, 22(4):940-946. |
| [19] | Buzgova R, Kozakova R, Sikorova L, et al. Development and psy-chometric evaluation of patient needs assessment in pallia-tive care(PNAP) instrument[J]. Palliat Support Care, 2016, 14(2):129-137. |
| [20] | Wang T, Molassiotis A, Chung BPM, et al. Psychometric assess-ment of the Chinese version of the Problems and Needs in Palliative Care questionnaire-short version in advanced cancer patients[J]. BMC Palliat Care, 2019, 18(1):68. |
| [21] | 吴洪寒, 陈湘玉, 殷小莉. 癌症患者安宁疗护需求问卷的编制及信效度检验[J]. 护理学杂志, 2020, 35(7):5-8. |
| [21] | Wu HH, Chen XY, Yin XL. Development and validation of cancer patients’ palliative care needs questionnaire[J]. J Nurs Sci, 2020, 35(7):5-8. |
| [22] | 刘小成, 辛明珠, 龚小玲,等. 中文版安宁疗护问题与需求问卷的修订及在居家癌症患者中的信效度检验[J]. 中华护理杂志, 2022, 57(14):1696-1702. |
| [22] | Liu XC, Xin MZ, Gong XL, et al. Revision of the Chinese version of the Problems and Needs in Palliative Care Ques-tionnaire and its reliability and validity test in home-based cancer patients[J]. Chin J Nurs, 2022, 57(14):1696-1702. |
| [23] | 刘凯莉. 晚期癌症患者安宁疗护感知与需求量表的汉化及应用[D]. 新乡: 新乡医学院, 2022. |
| [24] | 彭健, 沈蓝君, 陈祎婷,等. COSMIN-RoB清单简介及测量工具内部结构研究的偏倚风险清单解读[J]. 中国循证医学杂志, 2020, 20(10):1234-1240. |
| [25] | Mokkink LB, Terwee CB, Patrick DL, et al. The COSMIN studyreached international consensus on taxonomy,terminology,and definitions of measurement properties for health-related patient-reported outcomes[J]. J Clin Epidemiol, 2010, 63(7):737-745. |
| [26] | Mueser KT, Kim M, Addington J, et al. Confirmatory factor analysis of the quality of life scale and new proposed factor structure for the quality of life scale-revised[J]. Schizophr Res, 2017, 181:117-123. |
| [27] | Edelen MO, Reeve BB. Applying item response theory (IRT) modeling to questionnaire development,evaluation,and refine-ment[J]. Qual Life Res, 2007, 16(1):5-18. |
| [28] | 陈祎婷, 彭健, 沈蓝君,等. COSMIN方法介绍:制作患者报告结局测量工具的系统评价[J]. 护士进修杂志, 2021, 36(8):699-703. |
| [29] | De Vet HCW, Terwee CB, Mokkink LB, et al. Measurement in medicine:a practical guide[J]. Meas Med A Pract Guide, 2011:1-338. |
| [30] | 陈艺蕾, 张晟, 柴菽彬,等. 糖尿病中医疗效评价PRO量表的反应度研究[J]. 中华中医药杂志, 2020, 35(4):2031-2033. |
/
| 〈 |
|
〉 |