乳腺癌患者健康信息需求研究的范围综述

doi:10.3761/j.issn.1672-9234.2024.05.019

摘要/Abstract

摘要：

目的对乳腺癌患者健康信息需求相关研究进行范围综述，为未来有关研究提供参考。方法计算机检索PubMed、Web of Science、CINAHL、Embase、Cochrane Library、中国知网、维普、万方数据库中有关乳腺癌患者健康信息需求的文献，检索时限从建库至2023年7月2日，并由2名研究者对文献进行筛选阅读、提取归纳、分析结果。结果本研究共纳入15篇文献。患者存在治疗相关、疾病基本知识、康复保健、社会心理方面健康信息需求，不同疾病阶段乳腺癌患者的信息需求有差异。结论未来应进一步完善乳腺癌健康信息需求评估工具，通过纵向追踪探讨患者不同疾病阶段信息需求的变化规律，构建乳腺癌患者信息需求干预方案并验证干预效果。

关键词: 乳腺癌, 健康信息, 信息需求, 范围综述

Abstract:

Objective To provide a scoping review of studies related to the health information needs of breast cancer patients and a reference for relevant studies in the future. Methods The literature on health information needs of breast cancer patients in databases were searched by computer including PubMed，Web of Science，CINAHL，Embase，Cochrane Library，CNKI，VIP，and Wanfang. The search period was set from the establishment of the databases to July 2，2023. After that，the retrieved literature was screened，summarized，and analyzed by two researchers. Results A total of 15 articles were included. Patients had the information needs about treatment，basic knowledge of the disease，rehabilitation and health care，and psychosocial health，which varied at different stages of disease. Conclusion Future research on health information needs of breast cancer patients should follow the trend of the times，further improve assessment tools，and explore the changing characteristics of information needs of patients at different stages of disease through longitudinal tracking，so as to construct intervention programs to meet patients’ information needs.

Key words: Breast Cancer, Health information, Information needs, Scoping review

邹杨, 童冬彤, 杨文娟, 刘敏, 张海燕, 谢伦芳. 乳腺癌患者健康信息需求研究的范围综述[J]. 中华护理教育, 2024, 21(5): 627-633.

ZOU Yang, TONG Dongtong, YANG Wenjuan, LIU Min, ZHANG Haiyan, XIE Lunfang. A scoping review of research on the health information needs of breast cancer patients[J]. Chinese Journal of Nursing Education, 2024, 21(5): 627-633.

图/表 4

参考文献 32

[1]	Sung H, Ferlay J, Siegel RL, et al. Global cancer statistics 2020:GLOBOCAN estimates of incidence and mortality world-wide for 36 cancers in 185 countries[J]. CA Cancer J Clin, 2021, 71(3):209-249.
[2]	Latifi M, Tehrani HG, Karami NA, et al. Using information sources by breast cancer women treated with mastectomy[J]. J Educ Health Promot, 2019,8:68.
[3]	吴丽, 陈荣凤, 邹自玉, 等. 问题提示列表在乳腺癌患者中临床应用效果的系统评价[J]. 护理学报, 2022, 29(2):45-50.
[4]	杜小梅, 康凤英, 宋秋香, 等. 自我管理效能在乳腺癌术后病人疾病进展恐惧与创伤后应激障碍间的中介效应[J]. 护理研究, 2022, 36(7):1287-1292.
	Du XM, Kang FY, Song QX, et al. Mediating effect of self-management efficacy on fear of disease progression and post-traumatic stress disorder in patients undergoing breast cancer surgery[J]. Chin Nurs Res, 2022, 36(7):1287-1292.
[5]	Kugbey N, Meyer-Weitz A, Oppong Asante K. Access to health information,health literacy and health-related quality of life among women living with breast cancer:depression and anxiety as mediators[J]. Patient Educ Couns, 2019, 102(7):1357-1363.
[6]	仇如霞, 顾艳荭. 范围综述报告规范(PRISMA-ScR)的解读[J]. 中国循证医学杂志, 2022, 22(6):722-730.
[7]	Arksey H, O’Malley L. Scoping studies:towards a methodologi-cal framework[J]. Int J Soc Res Methodol, 2005, 8(1):19-32.
[8]	Luker KA, Beaver K, Lemster SJ, et al. Information needs and sources of information for women with breast cancer:a follow-up study[J]. J Adv Nurs, 1996, 23(3):487-495. pmid: 8655823
[9]	Graydon J, Galloway S, Palmer-Wickham S, et al. Information needs of women during early treatment for breast cancer[J]. J Adv Nurs, 1997, 26(1):59-64. doi: 10.1046/j.1365-2648.1997.1997026059.x pmid: 9231278
[10]	Raupach JCA, Hiller JE. Information and support for women following the primary treatment of breast cancer[J]. Health Expect, 2002, 5(4):289-301. pmid: 12460218
[11]	Lee YM, Francis K, Walker J, et al. What are the information needs of Chinese breast cancer patients receiving chemo-therapy?[J]. Eur J Oncol Nurs, 2004, 8(3):224-233.
[12]	Gopal RL, Beaver K, Barnett T, et al. A comparison of the information needs of women newly diagnosed with breast cancer in Malaysia and the United Kingdom[J]. Cancer Nurs, 2005, 28(2):132-140. doi: 10.1097/00002820-200503000-00007 pmid: 15815183
[13]	洪震. 乳腺癌化疗患者疾病不确定感的影响因素及个性化信息支持的效果研究[D]. 南京: 南京医科大学, 2009.
	Hong Z. Study on the influencing factors of uncertainty of breast cancer patients undergoing chemotherapy and the effect of personalized information support[D]. Nanjing: Nanjing Medical University, 2009.
[14]	单玉香, 谢亚君, 王海珍, 等. 初诊乳腺癌住院患者健康信息需求的研究[J]. 解放军护理杂志, 2010, 27(18):1387-1388, 1432.
[15]	Halkett GK, Kristjanson LJ, Lobb E, et al. Information needs and preferences of women as they proceed through radiotherapy for breast cancer[J]. Patient Educ Couns, 2012, 86(3):396-404. doi: 10.1016/j.pec.2011.05.010 pmid: 21664788
[16]	方琼, 吴蓓雯, 金秋燕, 等. 乳腺癌患者信息需求及其影响因素分析[J]. 护理管理杂志, 2013, 13(3):153-155,168.
	Fang Q, Wu BW, Jin QY, et al. Analysis of the influencing factors of breast cancer patient’s information needs[J]. J Nurs Adm, 2013, 13(3):153-155,168.
[17]	Halbach SM, Ernstmann N, Kowalski C, et al. Unmet informa-tion needs and limited health literacy in newly diagnosed breast cancer patients over the course of cancer treatment[J]. Patient Educ Couns, 2016, 99(9):1511-1518. doi: 10.1016/j.pec.2016.06.028 pmid: 27378079
[18]	裘佳佳, 李平. 乳腺癌病人患病不同阶段的信息和照护需求[J]. 护理研究, 2016, 30(15):1823-1827.
[19]	Sheehy EM, Lehane E, Quinn E, et al. Information needs of patients with breast cancer at years one,three,and five after diagnosis[J]. Clin Breast Cancer, 2018, 18(6):e1269-e1275.
[20]	奚凯雯, 刘新义, 沈逸潇, 等. 老年乳腺癌患者围术期信息需求特点的调查[J]. 护理学杂志, 2020, 35(20):10-13.
	Xi KW, Liu XY, Shen YX, et al. Investigation of perioperative information needs in elderly patients with breast cancer[J]. J Nurs Sci, 2020, 35(20):10-13.
[21]	Legese B, Addissie A, Gizaw M, et al. Information needs of breast cancer patients attending care at tikur anbessa specialized hospital:a descriptive study[J]. Cancer Manag Res, 2021,13:277-286.
[22]	Son NT, Hsu HT, Huong PTT, et al. Information needs of patients with breast cancer undergoing treatment in Vietnam and related determinants[J]. J Nurs Res, 2023, 31(2):e265. doi: 10.1097/jnr.0000000000000546 pmid: 36863025
[23]	李津, 李小妹, 郭萍丽, 等. 乳腺癌患者及其配偶术前知识需求的对比研究[J]. 中华护理杂志, 2002, 37(9):652-654.
[24]	Neumann M, Wirtz M, Ernstmann N, et al. Identifying and predicting subgroups of information needs among cancer patients:an initial study using latent class analysis[J]. Support Care Cancer, 2011, 19(8):1197-1209.
[25]	刘熠, 张娜, 欧阳艳琼. 男性乳腺癌患者心理体验质性研究的Meta整合[J]. 解放军护理杂志, 2020, 37(4):1-5.
[26]	宁凡, 王纹, 王效, 等. 归因心理调适对新诊乳腺癌患者健康相关生活质量的干预效果[J]. 中国心理卫生杂志, 2023, 37(4):306-311.
	Ning F, Wang W, Wang X, et al. Effect of attribution psycho-logical adjustment on health-related quality of life in newly diagnosed patients with breast cancer[J]. Chin Ment Health J, 2023, 37(4):306-311.
[27]	李璐璐, 李小妹, 韩冬芳, 等. 乳腺癌患者心理痛苦轨迹及影响因素的纵向研究[J]. 中华护理杂志, 2020, 55(8):1140-1146. doi: 10.3761/j.issn.0254-1769.2020.08.003
[28]	Chen WJ, Lü XA, Xu XH, et al. Meta-analysis for psychologi-cal impact of breast reconstruction in patients with breast cancer[J]. Breast Cancer, 2018, 25(4):464-469.
[29]	高文君, 黄慧, 田凤美, 等. 育龄期女性癌症病人生育忧虑研究进展[J]. 护理研究, 2022, 36(12):2181-2185.
	Gao WJ, Huang H, Tian FM, et al. Research progress on reproductive concerns in female cancer patients of repro-ductive age[J]. Chin Nurs Res, 2022, 36(12):2181-2185.
[30]	张鸿文. 北京市市属医院互联网诊疗现状分析及发展对策研究[D]. 北京: 中国医学科学院, 2022.
[31]	Sun WW, Luo AJ, Bian ZW, et al. Assessing the quality of online health information about breast cancer from Chinese language websites:quality assessment survey[J]. JMIR Cancer, 2021, 7(4):e25783.
[32]	李娜, 李燕, 刘金凤. 社区女性乳腺癌健康素养研究[J]. 护理学杂志, 2019, 34(10):95-97
	Li N, Li Y, Liu JF. Study on breast cancer literacy among community dwelling women[J]. J Nurs Sci, 2019, 34(10):95-97.