以家长为主导的癫痫患儿健康管理方案的构建与应用

doi:10.3761/j.issn.1672-9234.2023.11.001

摘要/Abstract

摘要：

目的构建基于健康行动过程取向理论的以家长为主导的癫痫患儿健康管理方案，并评价其应用效果。方法在文献研究及小组会议讨论的基础上，经过2轮专家函询，构建以家长为主导的癫痫患儿健康管理方案。采用便利抽样法，选取河南省某三级甲等医院2022年2月—5月收治的癫痫患儿家长为对照组（30名），2022年6月—9月收治的癫痫患儿家长为试验组（30名），对照组接受常规健康教育，试验组在对照组的基础上接受以家长为主导的癫痫患儿健康管理方案。比较出院后3个月两组癫痫疾病知识掌握情况、疾病管理水平及患儿癫痫发作次数。结果共有12名专家参与函询，专家熟悉程度系数为0.84，权威系数为0.89，判断系数为0.93，肯德尔和谐系数为0.172~0.333（均P<0.05）；构建的以家长为主导的癫痫患儿健康管理方案分为前意向阶段、意向阶段、行动阶段3个阶段。出院后3个月，试验组癫痫疾病知识得分为（85.13±6.99）分，高于对照组的（78.20±10.97）分，差异具有统计学意义（t=2.920，P<0.05）；试验组疾病管理困难亚量表得分为（27.40±5.91）分，低于对照组的（33.67±9.92）分，差异具有统计学意义（t=2.973，P<0.05）；试验组疾病管理能力亚量表得分为（48.10±4.85）分，高于对照组的（44.87±6.06）分，差异具有统计学意义（t=2.281，P<0.05）。两组患儿的癫痫发作次数比较差异无统计学意义（Z=0.187，P=0.852）。结论本研究构建的以家长为主导的癫痫患儿健康管理方案科学可靠、安全有效，可提高家长的疾病知识水平及疾病管理能力。

关键词: 癫痫, 儿童, 健康促进, 健康行动过程取向理论

Abstract:

Objective To construct a parent-led health management program for children with epilepsy based on Health Action Process Approach（HAPA） and evaluate its effect in application. Methods Based on literature research and group discussions，a parent-led health management program for children with epilepsy was constructed after two rounds of expert consultation. Using the convenience sampling method，parents of children with epilepsy admitted to a tertiary hospital in Henan Province from February to May 2022 were selected as the control group（30 cases），and parents of children with epilepsy admitted from June to September 2022 were selected as the experimental group （30 cases）. While the control group received conventional health education，the experimental group received a parent-led health management program based on the control group. The knowledge of epilepsy disease，the level of disease management，and the number of epileptic seizures were compared between the two groups three months after discharge from the hospital. Results A total of 12 experts responded to the consultation. The coefficient of expert familiarity was 0.84，the coefficient of authority was 0.89，the coefficient of judgment was 0.93，and the coefficients of Kendall’s harmony ranged from 0.172 to 0.333（all P<0.05）. The constructed parent-led health management program for children with epilepsy was divided into three stages：pre-intention，intention，and action. Three months after discharge，the epilepsy disease knowledge score of the experimental group was（85.13±6.99），higher than that of the control group（78.20±10.97），with a statistically significant difference（t=2.920，P<0.05）. Meanwhile，the disease management difficulty subscale score of the experimental group was（27.40±5.91），lower than that of the control group（33.67±9.92），with a difference of statistical significance（t=2.973，P<0.05）. In addition，the subscale score of disease management ability was（48.10±4.85），which was higher than that of the control group（44.87±6.06），and the difference was statistically significant（t=2.281，P<0.05）. There was no statistically significant difference in the number of seizures between the two groups（Z=0.187，P=0.852）. Conclusion The parent-led health management program for children with epilepsy constructed in this study is scientific，reliable，safe，and effective，and can improve the family’s knowledge of the disease and disease management ability.

Key words: Epilepsy, Child, Health Promotion, Health action process approach

贺秋平, 刘婷婷, 崔伟伟, 王葳, 曹苗苗, 马小莉, 叶蓓. 以家长为主导的癫痫患儿健康管理方案的构建与应用[J]. 中华护理教育, 2023, 20(11): 1285-1291.

HE Qiuping, LIU Tingting, CUI Weiwei, WANG Wei, CAO Miaomiao, MA Xiaoli, YE Bei. Construction and application of a parent-led health management program for children with epilepsy[J]. Chinese Journal of Nursing Education, 2023, 20(11): 1285-1291.

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